Interesting article from Beverley Hun... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Interesting article from Beverley Hunt regarding DOACs in APS

RazD profile image
RazD
10 Replies

doi.org/10.1111/bjh.17634

Written by
RazD profile image
RazD
To view profiles and participate in discussions please or .
10 Replies
HollyHeski profile image
HollyHeskiAdministrator

Thanks for posting- you just beat me to it.

chrissybell profile image
chrissybell

Thanks, interesting (as I'm on Dabigatran, but have been for over 7 years and was unstable on warfarin).

Piscesdreamer profile image
Piscesdreamer

I wish researchers would reach out to our groups and survey us directly. There are several of us who use doacs without issues.

Wittycjt profile image
Wittycjt in reply toPiscesdreamer

Pisces dreamer: May i ask are you triple positive and what are you taking?

Piscesdreamer profile image
Piscesdreamer in reply toWittycjt

I am triple positive and have been on apixiban (eliquis) since 2017. I am doing good.

Wittycjt profile image
Wittycjt in reply toPiscesdreamer

Any stroke history?

Piscesdreamer profile image
Piscesdreamer in reply toWittycjt

No, I have not had any strokes that I know of.

Tofino5 profile image
Tofino5

I am triple positive and on apixiban for 3 1/2 years, and I'm doing well. This is after 10 1/2 years on warfarin and doing very poorly. One drug, warfarin, is the standard treatment and probably for good reason, however it was bad for me personally. So I'm glad I had the option to switch to apixiban, which allows me a better life!

We are all different, with different needs, and we have to have a good relationship with our APS specialist or other doctors, and trust them .

I would love to see a study where the 4 DOACs are represented equally. Here there was only 1 person on Edoxaban. Only 4 on Dabigatran and 12 on apixiban, with 54 on Rivaroxaban. Studies are expensive and time consuming, for sure. I'd just like to see apples compared to apples.

Just my opinion :-)

Wittycjt profile image
Wittycjt in reply toTofino5

If i remember right youve had a stroke?

Lure2 profile image
Lure2

Hi RazD,

I am tripple positive incl Lupus Anticoagulant with very high titres since 2002. I am on Warfarin since 2012 and they have not found any clots whatsoever on me here in Stockholm.

I have two Specialists treating me since 2006 and I have had TIAs and microembolies.

I must only use Warfarin when tripple positive incl Lupus Anticoagulant.

Best wishes to you!

Not what you're looking for?

You may also like...

The INR Debate regarding APS

Having looked around a lot of the threads here and documentation surrounding APS, it strikes me...
MeerB profile image

APS in Spain

Hi Everyone. I was due to go to the London Bridge Clinic this month but unfortunately I am too ill...
InSpain profile image

Vitamin D and APS, some interesting reading..

Having just got a copy of the letter St T's has sent my GP after my recent appointment, which...
Andy_A profile image

Insertion in APS ACTION

Hey guys, long time no see.. I must share this with you. My doctor made me the first Brazilian...

APS in the summertime.

Hello. Found out I had Hughes and Lupus back in 2014 when I had a stroke. Summers have always...

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.