which covid vaccine: What vaccine... - Hughes Syndrome A...

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which covid vaccine

friesian47 profile image
13 Replies

What vaccine should a Hughes -aps person have that is safe

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friesian47 profile image
friesian47
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MaryF profile image
MaryFAdministrator

Hi, none of us are medically trained, so you need to have this conversation asap with your main consultant and GP, write to them by email copying them both in, if you can't get their email addresses, use PA's addresses marked for the attention of the right people. It is weighed up on your medical history, allergies etc, that is how they did mine. MaryF

Mermaidatheart profile image
Mermaidatheart

I had the two shot Moderna, no problems.

KellyInTexas profile image
KellyInTexasAdministrator in reply toMermaidatheart

Moderna not available in the UK, as far as I last heard.

Mermaidatheart profile image
Mermaidatheart in reply toKellyInTexas

Yes, sorry...forgot I am talking to people from around the world!

KellyInTexas profile image
KellyInTexasAdministrator in reply toMermaidatheart

Easy to do- I can scarcely keep up- then favor in all the other vaccines against Covid in Asia we rarely hear of…

Ray46 profile image
Ray46 in reply toKellyInTexas

Moderna is approved / available in UK (I know at least one person here who's had it) - Johnson & Johnson / Janssen is not yet available.

official page here for those interested: nhs.uk/conditions/coronavir...

Back on the original question, pretty sure I've seen a video interview with one of the leading specialists (probably found link on this group) where exactly this question was asked, and the answer was "whichever one you are offered".

KellyInTexas profile image
KellyInTexasAdministrator in reply toRay46

Is it really? I was told it was not available in the Uk- but that was some months ago.

Nesting profile image
Nesting

Hello . I’ve had two Astra Zeneca jabs and no problems with it , only had sore arm for a couple of days . Diagnosed with aps

Tucson profile image
Tucson

I've also had 2 Astra zeneca jabs with zero side effects, not even a sore arm. I asked Prof. Hunt my consultant before having the jab and that's the one she recommended for me as I've had severe reaction in the past to penicillin. Remember we're not all the same and suffer in different ways with Aps.

HollyHeski profile image
HollyHeskiAdministrator

Professor Hunt has stated 'it is better for us to have vaccine than not, covid itself is a terrible virus'.We are all so different with our APS, I would check with your specialist if you are concerned.

I myself had 2 x Astra Zeneca- few issues but nothing compared to Covid.

Lure2 profile image
Lure2

Hallo friesian47,

Have you had your Antiphospholipidsyndrome for a long time? I wonder if you are also on Warfarin or have some anticoagulationdrug for your too sticky blood?

I live in Sweden and I am on the anticoagulation drug Warfarin with an INR of 3.5 -4.0.

The Hematologist has told me it does not matter which sort of vaccine you take especially as those of us on Anticoagulation are also protected for any very unusual clot.

I am over 60 years of age I want to tell you.

Talk to your Specialist. In which country do you live?

Lure2 profile image
Lure2 in reply toLure2

I must say that I can only talk for the Vaccin-drugs we use in Sweden like Phizer, Moderna and Astra-Zenica. So I should not have answered your question. Sorry!

Talk to your Specialist!

Wittycjt profile image
Wittycjt

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