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IGM Anti-Cardiolipin Antibodies

Or81 profile image
Or81
14 Replies

I am no doctor, and I am just sharing my experience which might help others. After several years of symptoms and visits to the doctor I was diagnosed with APS due to my persistent IGM Anti-Cardiolipin Antibodies and my livedo reticularis along with my deep white matter lesions on my brain.

My IGM Anti-Cardiolipin Antibodies levels were between 60-65 for nearly two years. After reading a paper recently published on the effect of Ginger on antiphospholipid antibodies in preclinical trials, I decided to add ginger capsules to my medicine regime. I monitored closely my INR and to my surprise ginger capsules had no effect on my INR. Nearly two months after I started taking ginger capsules my IGM Anti-Cardiolipin Antibodies levels were at 49. I was not too excited about it but after doing some research on the half-life on Anti-Cardiolipin Antibodies I was more optimistic. It takes some time to break down those antibodies once they are already in the blood stream. Five more months after starting ginger capsules my IGM Anti-Cardiolipin Antibodies are in the normal level (undetectable). I do not know if this is because of the ginger capsules or because of something else. I am just reporting my experience. As I mentioned before, it might help others.

Good luck to all of you!

Orlando

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Or81
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14 Replies
Jmiller623 profile image
Jmiller623

Thank you so much for sharing this! I am going to try it. Can’t hurt and I love ginger. Your claims aren’t unfounded and evidence was published in JCI.

insight.jci.org/articles/vi...

Many thanks and so happy to hear you’re cardiolipin free regardless the cause. Cheers. ❤️xx

Or81 profile image
Or81 in reply toJmiller623

Thank you! I am also very happy! If you would like to give ginger a go please be aware that according to researchers ginger capsules are more powerful than natural ginger. The active principle of natural ginger gets transformed into something more powerful after the chemical extraction. Good luck!

Momba49 profile image
Momba49 in reply toOr81

What dosage are you taking of ginger?

Or81 profile image
Or81 in reply toMomba49

During the first three months I was taking a 500 mg capsule at lunch and a 500 mg capsule at dinner as per this trial on the anthistaminic effects of ginger:

ncbi.nlm.nih.gov/pmc/articl...

However, during the last two months I have been only on a single 500 mg capsule at breakfeast. Please if you are going to try ginger and you are on warfarin make sure that you monitor your INR closely to see whether there is an effect. Good luck!

Momba49 profile image
Momba49 in reply toOr81

Thank you for this information, I will check with my MD for proper testing schedule once I start it.

Lure2 profile image
Lure2

Thank you for telling your story!

Or81 profile image
Or81 in reply toLure2

You are welcome!

GinaD profile image
GinaD

The human body is much more complicated than so-called " modern" science understands. There are more dots to tie together. Ginger also has an effect on the gut microbiome, and a healthy microbiome means less or no leaky gut, which means a calmer immune system. And I am not saying that the nutrients in ginger are not related directly to a calmer immune system, just that the microbiome may also be involved.

Or81 profile image
Or81 in reply toGinaD

I agree, there is still so much to learn about our inmune system!

MaryF profile image
MaryFAdministrator in reply toGinaD

I take raw ginger every day as part of my routine, however I am not on Warfarin, still essential to let the GP/consultant know, and check in with them, INR wise especially. I am not on Warfarin so can be a bit more flexible. MaryF

Wittycjt profile image
Wittycjt

Love this!

Jmiller623 profile image
Jmiller623

Hello Or81 Just an update. So I’ve been taking ginger capsules 1000 mg at night since this post. Definitely helps with GI stuff for me. But I notice that when I don’t take it, I feel like rubbish. I think it definitely does something. What? I’m not sure. I haven’t had my aPL titers done since lupus and persistent aPL diagnosis. So glad I saw this post. I come on and off the forum every couple of months.

Or81 profile image
Or81 in reply toJmiller623

Hi! I am very happy to hear that ginger seems to be helping you! Over the last year while taking the ginger capsules my aPL titers have remained undetectable. Of course, I can not assure that ginger is responsible for this but my aPL antibodies disappeared after starting my trial with ginger 😜

Wittycjt profile image
Wittycjt in reply toJmiller623

Any other update?, tyia

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