Genetic test results: Hey guys I didnt... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,481 members•10,659 posts

Genetic test results

Anna1511 profile image
Anna1511
•7 Replies

Hey guys I didnt know how to edit my last post so I write a bit again 🤭😂

I wrote last about my genetic testing, results came in and my GP Said i was ready to stop xarelto. I didnt in december because i had a long haul flight. Well today i was again at my GP for an infusion and he mentiones how I have APS ??!!! How could have he missed that in Dec?. Now am left wondering...

he said when I keep taking anticoa the chances are 1% of re clotting and when I take it they are 4%

Thought? Am confused

Thanks guys

Written by
Anna1511 profile image
Anna1511
To view profiles and participate in discussions please or .
Read more about...
7 Replies
•
KellyInTexas profile image
KellyInTexasAdministrator

Hello Anna,

rheumnow.com/content/2019-e...

This will help you understand the criteria for APS diagnosis.

Where do you live?

Anna1511 profile image
Anna1511• in reply toKellyInTexas

Germany

KellyInTexas profile image
KellyInTexasAdministrator• in reply toAnna1511

What is you nearest city?

Anna1511 profile image
Anna1511• in reply toKellyInTexas

Dortmund Duisburg

I need to fight for a referral I guess

KellyInTexas profile image
KellyInTexasAdministrator• in reply toAnna1511

google.com/search?q=Gapss+s...

This is another interesting journal and gives an idea of the nature of the risks and how doctors are assessing them at this time.

Not all patients respond to these antibodies in the same way.

Wittycjt profile image
Wittycjt• in reply toKellyInTexas

Interesting read-but they dont mention if these patients are on anticoags so i would think this would make a better prognosis if on anti coags or such

MaryF profile image
MaryFAdministrator

Hello if you ever need to edit again, go to the bottom of post, and where it says more, there is a drop down menu, you can edit there, and then save! MaryF

Not what you're looking for?

You may also like...

Lupus Anticoagulant repeat test.

Hi all, new to the group but really after some knowledgeable advise, I have 2 children had no...
lisarig profile image
•

Confused after visit to the doctors today.

Hi again everyone, im very confused and very very upset after speaking to my GP today. I had...
•

Lupus Anticoagulant query

Hi, I wonder if anyone can help? My GP recently ran blood tests to look into my ongoing issues of...
Chris1802p profile image
•

How long did you wait for results?

Hi all, Just a question wondering how long you had to wait for results once you had seen a...
Shaddix29 profile image
•

does anyone else wander why are memories are still affected despite being on warfarin & in range?

Hi guys i cant help but think my short term memory, especially, has got worse - i had a series of...
kathyD64 profile image
•

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator
KellyInTexas profile image
KellyInTexasAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.