Genetic test results: Hey guys I didnt... - Hughes Syndrome A...

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Genetic test results

Anna1511 profile image
Anna1511
•7 Replies

Hey guys I didnt know how to edit my last post so I write a bit again 🤭😂

I wrote last about my genetic testing, results came in and my GP Said i was ready to stop xarelto. I didnt in december because i had a long haul flight. Well today i was again at my GP for an infusion and he mentiones how I have APS ??!!! How could have he missed that in Dec?. Now am left wondering...

he said when I keep taking anticoa the chances are 1% of re clotting and when I take it they are 4%

Thought? Am confused

Thanks guys

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Anna1511
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KellyInTexas profile image
KellyInTexasAdministrator

Hello Anna,

rheumnow.com/content/2019-e...

This will help you understand the criteria for APS diagnosis.

Where do you live?

Anna1511 profile image
Anna1511 in reply to KellyInTexas

Germany

KellyInTexas profile image
KellyInTexasAdministrator in reply to Anna1511

What is you nearest city?

Anna1511 profile image
Anna1511 in reply to KellyInTexas

Dortmund Duisburg

I need to fight for a referral I guess

KellyInTexas profile image
KellyInTexasAdministrator in reply to Anna1511

google.com/search?q=Gapss+s...

This is another interesting journal and gives an idea of the nature of the risks and how doctors are assessing them at this time.

Not all patients respond to these antibodies in the same way.

Wittycjt profile image
Wittycjt in reply to KellyInTexas

Interesting read-but they dont mention if these patients are on anticoags so i would think this would make a better prognosis if on anti coags or such

MaryF profile image
MaryFAdministrator

Hello if you ever need to edit again, go to the bottom of post, and where it says more, there is a drop down menu, you can edit there, and then save! MaryF

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