Itchy : Hi Holly and all! Took ur... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,404 members10,613 posts

Itchy

Debbweb01 profile image
20 Replies

Hi Holly and all! Took ur advice and they took blood work and gave me prednisone for itch hope it works! Thanks

Written by
Debbweb01 profile image
Debbweb01
To view profiles and participate in discussions please or .
Read more about...
20 Replies
rach1081985 profile image
rach1081985

Fingers crossed 4 you xx

HollyHeski profile image
HollyHeskiAdministrator

Hope the itching and your eyes settle down asap!! Prednisone usually works quite quickly, let's hope so, enough at least for you to get some sleep xx

Debbweb01 profile image
Debbweb01 in reply toHollyHeski

Yes I thought it wud work quickly especially that I’m on hi dosage! I just have no patience for this! Merry Christmas to all

Debbweb01 profile image
Debbweb01 in reply toHollyHeski

I didn’t think prednisone would work because antihistamines didn’t! This is not an allergy! I’m going crazy! I aware the itching getting worse! Hopefully it goes away soon Guess just wait for bloodwork!

HollyHeski profile image
HollyHeskiAdministrator in reply toDebbweb01

Prednisone is a glucocorticoid medication mostly used to suppress the immune system and decrease inflammation in conditions such as asthma, COPD, and rheumatologic diseases, doesn't work the same as an antihistamine.

Deb, if it's getting worse, you must go back, don't suffer this on your own.

Are there any other symptoms?

Debbweb01 profile image
Debbweb01 in reply toHollyHeski

Tired stomachache and just exhausted

Debbweb01 profile image
Debbweb01 in reply toDebbweb01

Also have had diarrhea for a couple of weeks on and off

HollyHeski profile image
HollyHeskiAdministrator in reply toDebbweb01

Any rash?

Debbweb01 profile image
Debbweb01 in reply toHollyHeski

No rash just have a small ringworm from my prosthetic leg! I am mostly allergic to my leg stuff so it comes often! It’s a fungus and goes away with cream

HollyHeski profile image
HollyHeskiAdministrator in reply toDebbweb01

Are your eyes improving? You've probably got rash from scratching too.

How long has this been going on?

Have you started any new meds or creams, washing powder etc? I'm sure you've asked yourself these questions, sorry.

Have you tried a tepid shower?

Debbweb01 profile image
Debbweb01

They told me to bathe in cool water but so cold here I can’t imagine it! My eyes same and very itchy! I guess I must be patient and wait for bloodwork! I was hoping for a miracle with prednisone, but no such luck! It’s very hard for me to shower cuz of prosthetic leg! I have a chair, but very unsteady as I have a small old tub! Lol... I sit in tub to bathe and have hand held shower! I stopped scratching cuz it fruitless! It just gets worse when I scratch! Only scratch when I can’t help it! I just wonder if Sjogrens can cause this and maybe I’m just in a flare again! Hopefully that’s it and I’ll just keep on Truckin’

MaryF profile image
MaryFAdministrator in reply toDebbweb01

I hope the new medication is starting to work? MaryF

Debbweb01 profile image
Debbweb01 in reply toMaryF

No nothing works, but I’ll just keep on trying to find any remedy! This is so very uncomfortable! I can’t scratch it cuz it don’t help and I’m just tearing my skin up! Lol... it itches so bad it’s like a burn

MaryF profile image
MaryFAdministrator in reply toDebbweb01

Cold aloe vera gel may help, (topically), it does for me. However if no change or it worsens do go back to the GP or consultant. MaryF

Debbweb01 profile image
Debbweb01 in reply toMaryF

Oh yes I keep cold aloe in fridge! Thx good idea! It seems I get over one thing and then flare up in another! When does it stop! I must get to some warmer weather!

MaryF profile image
MaryFAdministrator

Great news, I hope it all calms down in time for Christmas! MaryFx

Rosemary76210 profile image
Rosemary76210

Deb, I would take Veganworld’s advice and try just eating rice and decaf tea Igor a day or two and give your liver a rest. I am so sorry you are experiencing this and right at Christmas. God bless you!

Debbweb01 profile image
Debbweb01

Yes sounds good Throuhout my life I’ve been on too many medications and think it’s taking its toll on me! I just want to stop all meds and give it to God! All these meds and stuf go thru the liver and who knows what damage they do! Thank you and I’m pretty tough! My poor hubby in Nursing home with Alzheimer’s and my son Keith With a form of mental Retardation called Williams Syndrome! He’s actually my stepson, but have him for 40 years and he’s mine! He too is age 63 and there is no data on his age because he’s lived past his life span, but he too is failing! I just need to be around for them to make sure they’re ok! It’s hard but life throws us some curves and we just must keep fighting! Some days I say when does it stop! We all have our troubles and I just give it to God when I don’t know what to do! Today is my pity party, tomorrow I’ll be up and about to fight it off! God Bless Y’all at this time and stay strong and healthy...

GinaD profile image
GinaD

it might take a few days for the prednisone to kick in. 🤞

Debbweb01 profile image
Debbweb01 in reply toGinaD

Thx Gina I’m keeping my fingers crossed

Not what you're looking for?

You may also like...

itchy skin

Hi just wondering is anyone has had itchy skin,all over and also my skin looks like I have a...

Itchy Skin

Hi every one. Is an itchy skin anything to do with LA/APS. It feels like something is crawling...

Itchy eye lid

Noticed a few times on my left eye lid it gets very dry then looks I’ve cut it . Stays for a few...
Nesting profile image

Itchy and very tender scalp

Does anybody who has MS or APS suffer with an itchy and extremely tender scalp? Mine has been...
Stereolover profile image

itchy sores that don't ever go away!!!

I have these itchy sores that appear on my forearms, hands, fingers, and legs.  they seem to all...
boogyman profile image

Moderation team

See all
lupus-support1 profile image
lupus-support1Administrator
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.