Hello Everyone and Merry Christmas and a Happy and Healthy New Year! I have been itching all over my body for days! Don’t know what’s causing this! Anybody in APS have this! I’m going crazy! It wakes me up at night too! My face my head my eyes my whole body! Do I go to my blood doc or allergy doc?
Body Itching: Hello Everyone and Merry... - Hughes Syndrome A...
Body Itching
Written by
Debbweb01
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17 Replies
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You know what I was exactly same last night everywhere so itchy, got few spots on chest this morning
I have no spots took benydryl and still itching! My eyeballs itch eyes very red and sore
No new meds no nothing going crazy!
MaryFAdministrator
Hi, do get in touch with your doctor as soon as possible, my daughter had hives for eighteen months, and calmed down once on Plaquenil, for her Lupus. This does happen to me regularly, and I can't always work out what the allergy is, (I do have Stevens Johnson Syndrome), a type of mast cell disorder, I usually react well to an allergy pill, however if it does not work I do go straight to my GP, to be monitored. MaryF
Debb, I would start with the Hemo and have your liver enzymes checked. I have an antibody that is associated with PBC (Primary Biliary Cholangititis) and read that itching is a symptom. Fortunately my liver is still functioning, so I don't understand my high titre ANA with a pattern associated with PBC. Hopefully it's just your allergies acting up. Praying relief for you and everyone else soon.
thx for the advice it’s great advice! My hemotologist joined a group now and doesn’t really care much anymore! Spoke today and was told to go to my uneducated primary doctor! If he refuses to do tests I’ll go to my gastro or hepatologist! Thx this helps a lot!
Hi, I go through this and I mentioned it to my gastro as I was seeing him for something else, he said it related to too much fat in the body that the liver was struggling to cope with. This is different to high cholesterol.
So yes, please see your gastro, especially as anti histamine is not helping either.
Hi Holly I am going crazy with this itch! I’m seeing my primary doctor tomorrow! This itch seems to be affecting my eyes pretty badly! It itches so bad it burns and my eyes feel spongy! It looks like someone burnt my eyes! I hope it does t affect my vision! Should I see an eye doctor too? Every part of my body itches inside my nose ears head everywhere! It’s so uncomfortable! I hope someone can take this itch away... Thx and merry Christmas
Can you see a doctor today, I'm worried this is a severe flare or going into an anaphylactic reaction?
Do you have eye drops for your sjogrens and if do does his help?
Yes eye drops don’t help at all my eyes spongy! Yes I can go to Emergency med and see if they can help me! I’ll go now cuz I’m going crazy
Good, as they can check your bloods, thyroid etc - let us know how you get on xxx
Hi Holly I went and they took bloodwork Liver enzymes and all plus putting me on prednisone for itch hope it helps! Thanks for ur advice
Hi
I have had this the last eighteen months and for me it turned out to be gastro diet related. Out of the blue I suddenly became intolerant to lots of food stuff. Seen all kind of doctors and they found a polyp in my gallbladder. They removed my gallbladder and the itching improved but I still have to eat a careful diet. I worked it out by fasting for a day and eating only rice and de caffeinated tea. That night the itching stopped. There are many reasons I found the interenet for itching but this worked for me and my gastro doctor said he is seeing more and more cases of this but doesn't know why.
Might not be your issue but thought it was worth sharing.
Kaz x
Thanks for great feedback! You never know
I have chronic idiopathic Urticaria. I have parts of my body that will just start having hives for no apparent reason. I am allowed to dose high on claritin if needed. I am having a round of blood tests done in January for some possible new food allergies. I may talk with the allergist to see if there may be any intolerances or the like adding to the hives.
Wish I reacted to allergy meds, but it does absolutely nothing! My eyes actually hurt now from the itch and they’re red! The inside of my nose itches every part of my body itches leaving no relief in sight! I’ll ask my doctor to take liver enzyme tests but he don’t like to be told so he may not and I’ll have to go to gastro doc! Thx for feedback and hope u do well
Go to an ophthalmologist as soon as possible.
