Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,402 members•10,612 posts

All posts for September 2017

what the heck is going on in Wales?

Saw consultant today (who has been very helpful) and he is refering me to the London Lupus Centre, as he seems to think that APS is the most likely...

Saw consultant today (who has been very helpful) and he is refering me to the L...

•7 years ago

Having aps with a chest port

I have had a chest port and have aps since April. It is wonderful now I don't have to worry about my veins blowing all the time.

I have had a chest port and have aps since April. It is wonderful now I don't ha...

Janetorlando9311

•7 years ago

plasmapherisis and APS review

Have been preparing info to see consultant on Monday. I want to ask him about plasmapherisis, as it might be good for at least one of the autoimmune disorders...

Have been preparing info to see consultant on Monday. I want to ask him about pl...

•7 years ago

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Pre-Surgery Anti-coagulation Advice Sought

Hi all. I'm having nose surgery to help me breathe better in a few weeks and a pre-op consult in a couple of weeks. I've already been told that I'll need to...

Hi all. I'm having nose surgery to help me breathe better in a few weeks and a ...

•7 years ago

APS and a chest port?

I'm just wondering if anyone on here has sticky blood and also has a chest port? I've tried looking it up and didn't find much about it.... My INR likes to...

I'm just wondering if anyone on here has sticky blood and also has a chest port?...

•7 years ago

Baby is here!

Hi everyone, What a journey! After 6 pregnancies I gave birth this morning to our second daughter - Amelie Rose. Born at 39 weeks weighing 7lbs 5oz. So...

Hi everyone, What a journey! After 6 pregnancies I gave birth this morning to ou...

•7 years ago

Heparin hit

I think regulars on here are aware of my recent health issues and hospital stay. This morning I had what is known as a Anti X Tena Assay blood test....

I think regulars on here are aware of my recent health issues and hospital stay....

•7 years ago

Back of ear pain

I have a sharp pain behind my left ear that comes and goes and my scalp is very tender can anyone tell me if they have had this problem before and what did you...

I have a sharp pain behind my left ear that comes and goes and my scalp is very ...

•7 years ago

right side pain below the ribs

hi! I suffer UTI LAST 4 weeks ago but I take medicine for it to cure.. suddenly my right side body feel so pain every time I touch it. What do you think is the...

hi! I suffer UTI LAST 4 weeks ago but I take medicine for it to cure.. suddenly ...

•7 years ago

Completing on line travel insurance

Four questions for people if they wish to answer for some research I'm doing . 1. Who travels and if so uses health insurance? 2.If you have used health...

Four questions for people if they wish to answer for some research I'm doing . 1...

•7 years ago

APS & Pregnancy - Being induced early - Advise

Hello, I am currently 23 weeks pregnant and I have APS. Suffered a Sagittal sinus thrombosis (blood clot on the brain) 10 years ago which caused multiple...

Hello, I am currently 23 weeks pregnant and I have APS. Suffered a Sagittal sin...

•7 years ago

Psychosomatic or???!

I know most of us are plagued by the awful headaches. I had a DVT in my internal jugular vein last year. It's disappeared and largely I forget about it. I'm on...

I know most of us are plagued by the awful headaches. I had a DVT in my internal...

•7 years ago

Answer?

I wrote a request last week about specialists in my area then raised questions about a specialists written report. I am hoping someone can help me with those...

I wrote a request last week about specialists in my area then raised questions a...

•7 years ago

Catarakt

Anyone done an operation of a Cataract? Perhaps you know that I have had a lot of eye-issues from my right eye. Saw double, lost the vision on my right eye for...

Anyone done an operation of a Cataract? Perhaps you know that I have had a lot o...

•7 years ago

Body aches

Hie everyone, I'm new here Has anyone experienced moving pain around the body such as abdominal pains, chest pain, back pain, tingling and at times headaches...

Hie everyone, I'm new here Has anyone experienced moving pain around the body su...

•7 years ago

Results back

Ok I'm confused my first test was LA positive and from one lab my second test is completely different and from another lab here's the second seems now a PTT LA...

Ok I'm confused my first test was LA positive and from one lab my second test is...

•7 years ago

Injuries

I have a question I understand with cuts there's concerns when you have APS but what about when you hit your knee twice very hard on a metal frame no bleeding...

I have a question I understand with cuts there's concerns when you have APS but ...

•7 years ago

Endoscopy......

Anyone who's had an endoscopy (Upper GI) is it ok to stay on your warfarin at your normal range? Do you need clexane instead? As a procedure rather then an...

Anyone who's had an endoscopy (Upper GI) is it ok to stay on your warfarin at yo...

•7 years ago

Results back

Ok I'm confused my first test was LA positive and from one lab my second test is completely different and from another lab here's the second seems now a PTT LA...

Ok I'm confused my first test was LA positive and from one lab my second test is...

•7 years ago

Severe sudden pain in head

The last few days I've been getting these very sharp sudden stabbing like pains in my head, mainly the top of my right head and into the back of my eye. I...

The last few days I've been getting these very sharp sudden stabbing like pains ...

•7 years ago

A brief break for one of our administrators

Dave is a much valued Administrator for this forum, his partner is rather ill, so he is taking a brief break from his administrator role, but he will be back...

Dave is a much valued Administrator for this forum, his partner is rather ill, s...

Administrator•7 years ago

Is my life in danger?

Doctor's first found blood clotting levels were high. Then second test during testing clotted up.

Doctor's first found blood clotting levels were high. Then second test during te...

•7 years ago

Slurred speech, unusual movements

Hello everyone, I never join chats, but have had APS since 1993 and have several recent issues and am trying to learn of the correlation. I had an MRi which...

Hello everyone, I never join chats, but have had APS since 1993 and have several...

•7 years ago

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