Saw consultant today (who has been very helpful) and he is refering me to the London Lupus Centre, as he seems to think that APS is the most likely explanation for the unexplained symptoms.
But he is still looking at scleroderma on account of raynaud's, GERD, swollen fingers etc. What is unbelievable is that he requested an anti-polymerase III test over a month ago along with other tests. And nothing came back for anti-polymerase III. Turns out that they dont do these tests in Wales! Maybe the Welsh NHS thinks that nobody in wales get this (the second most common scleroderma anti-body). Maybe they think it doesnt make it over the Seven Bridge, perhaps isnt prepared to pay the toll.
If that is not bad enough, also turns out u cant get a high magnification capiloscopy in Wales (which is used to detect early scleroderma). What the heck is going on in Wales!?
Anyway, thanks for kind help and support that people on this forum have given. Will report back on wht happens at the London Lupus Centre.