Have been preparing info to see consultant on Monday. I want to ask him about plasmapherisis, as it might be good for at least one of the autoimmune disorders that have recently been diagnosed with and might be useful if turns out have APS and/ or scleroderma (which consultant is investigating). Here is a recent review that I came across which seems pretty interesting.
I really dont know if plasmapherisis is a good idea or not but it looks like it coud make a big difference and is generally safe, though complications have occured in some cases. My feeling is that it should perhaps (after more research and if that research is promising)be regularly available on the NHS for APS, SSc etc but that its not on account of being labour intensive and therefore expensive. I think its something that maybe charities could campaign on? Just an idea.