Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for April 2017

I want to loose weight!

I want to loose weight but I just don't know how? I have to eat breakfast so I can take my steroids I have to eat dinner to take azothioprine & painkillers I...

I want to loose weight but I just don't know how? I have to eat breakfast so I c...

WendyWoo50

•7 years ago

16 Replies

Dropping lower & increasing Warfarin

My INR is set at 3.5--4.5 2 weeks ago 4 Last week 3.3 increased W to 19mg/d Today 3.2 increased W to 20mg/d Headaches & my body is screaming in pain every...

My INR is set at 3.5--4.5 2 weeks ago 4 Last week 3.3 increased W to 19mg/d Toda...

WendyWoo50

•7 years ago

13 Replies

Can APS go away or into remission? How about exercise and diet?

I was diagnosed in October 2016 with APS. I have a chronic DVT in my right leg. I know my clot is here to stay but I was wondering if anyone has gone into...

I was diagnosed in October 2016 with APS. I have a chronic DVT in my right leg. ...

Heidi-B

•7 years ago

15 Replies

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Anyone gone from warfarin to xarelto and back to warfarin?

Hi all, I was diagnosed 16 years ago with aps. Recently I have had some weird sensations like i can feel the blood moving through my head. At first I...

Hi all, I was diagnosed 16 years ago with aps. Recently I have had some weird...

Sanpap

•7 years ago

21 Replies

Inr crashes

Just taken my inr do it ever Tuesday inr 2.6 😑Have taking fragmine injection my target inr is 4 take injection when below 3 Keep putting my wafrin dose up...

Just taken my inr do it ever Tuesday inr 2.6 😑Have taking fragmine injection my...

Tim_Thorpe

•7 years ago

14 Replies

Professionals whom don't understand.

Hi I've had alot of criticism from some childrens social services about Antiphospholipid syndrome. They've been very negative and don't understand that both my...

Hi I've had alot of criticism from some childrens social services about Antiphos...

KarenOR

•7 years ago

12 Replies

Link

When I first got I'll last year their first thought on what had happened to me was cadasil I'd never heard of this before and did alot of reading on it I've...

When I first got I'll last year their first thought on what had happened to me w...

rayl

•7 years ago

3 Replies

Ct scans

Under prof hunt at st Thomas hospital London Have a strokes and mini strokes should I be having ct or MRI scans on regular bias i.e. Once a year ??

Under prof hunt at st Thomas hospital London Have a strokes and mini strokes sh...

Tim_Thorpe

•7 years ago

4 Replies

DRVVT numbers

What does the numbers 7 12 11 9 8 deficiency in clotting?

vinny-chieffo

•7 years ago

1 Reply

Pain

Hi, Would just like to know if anyone could enlighten me on the following- I have been suffering severe pain , it started in the back of head, then my lower...

Hi, Would just like to know if anyone could enlighten me on the following- I hav...

Kimu

•7 years ago

1 Reply

Advice needed

I recently visited my gp and asked if she could give me anything for vaginal dryness I told her i did not want tablets,so she gave me pessaries,which contain...

I recently visited my gp and asked if she could give me anything for vaginal dry...

donnabrain

•7 years ago

9 Replies

Its been a while hello all

Hi everyone its been a while since i have posted on here but just wanted to update you, I have had my stem cell transplant I won't go into gory details but if...

Hi everyone its been a while since i have posted on here but just wanted to upda...

beckyb

•7 years ago

2 Replies

Just got specialist appointment 😄

Very excited to be seeing a specialist in May after a few months waiting

Dot69

•7 years ago

2 Replies

Micro clots

Having mircro clots in brain are the serous condition ? If so how serious are they and should I be concerned 😳

Having mircro clots in brain are the serous condition ? If so how serious are th...

Tim_Thorpe

•7 years ago

3 Replies

Functional medicine update

So, as I mentioned last summer, I have taken a trip to "the dark side" (in the opinion of many doctors) and went to Cleveland Clinic's Functional Med...

So, as I mentioned last summer, I have taken a trip to "the dark side" (in the o...

GinaD

•7 years ago

8 Replies

Arthritis

I have a couple of questions from reading your posts. I have developed some problems lately and wondered if they are connected to Hughes. Sleep is a problem...

I have a couple of questions from reading your posts. I have developed some pro...

Salmonious

•7 years ago

2 Replies

Hand turning blue

Hi all, I test positive for lupus anticoagulant; I am currently 26 weeks pregnant. This morning when I was washing my son I noticed that the palms of my hands...

Hi all, I test positive for lupus anticoagulant; I am currently 26 weeks pregnan...

Oliversmum

•7 years ago

12 Replies

Micro clots

prof hunt Tuesday up my aziophrine to 150 mg daily . She said my wafrin was not controlling my APS syndrome as it was to strong and that was what is causing...

prof hunt Tuesday up my aziophrine to 150 mg daily . She said my wafrin was not ...

Tim_Thorpe

•7 years ago

20 Replies

Warfarin stress

Hi advice please: Saw one of professor Hunts team yesterday for 3rd time, as always supportive and informative. Warfarin unstable so prescribed fargmin to...

Hi advice please: Saw one of professor Hunts team yesterday for 3rd time, as alw...

Banksygirl

•7 years ago

26 Replies

Daughter

My daughter who is 34 was just diagnosed with this. When she was 3 she had ITP. Is there a connection?

My daughter who is 34 was just diagnosed with this. When she was 3 she had ITP. ...

Interested08

•7 years ago

18 Replies

APS awareness and treatment

CormorantWatcher

•7 years ago

20 Replies

Blood Transfusion and Hughes Syndrome

I just found your site and I am hoping that I can find my answer here. I have a rare blood type (can't remember which) I believe I can take anyone's blood...

I just found your site and I am hoping that I can find my answer here. I have a...

Salmonious

•7 years ago

9 Replies

Temporal arthritis, any help appreciated

Giant cell temporal arthritis, newly diagnosed today or at least the GP seems convinced. Sent me home with bucket full of steroids and review again Friday. GP...

Giant cell temporal arthritis, newly diagnosed today or at least the GP seems co...

Julie_T

•7 years ago

4 Replies

Link to Travel insurance

Hi could somebody tell me how you find link to travel insurance please. Quite new to this site but am going away next week & struggling to find insurance thanks

Hi could somebody tell me how you find link to travel insurance please. Quite ne...

Lind8

•7 years ago

3 Replies

Aps

Hi I'm new to this group. I was diagnosed in 2007 with aps after I had lost my 4th baby . Iv gone on to have 4 beautiful kiddies . I'm now pregnant with baby...

Hi I'm new to this group. I was diagnosed in 2007 with aps after I had lost my 4...

Sarahjane11

•7 years ago

3 Replies

health insurance

oops ignore my last post, have just found the links about insurance !! thanks

krysty

•7 years ago

1 Reply

health insurance

Hi All I'm going on a 2 week trip to Bavaria soon and just wondered if anyone had advice about a good place to obtain medical insurance? I have APS and...

Hi All I'm going on a 2 week trip to Bavaria soon and just wondered if anyone h...

krysty

•7 years ago

1 Reply

Protein s deficiency

Hi i have obstetric APS but have since been diagnosed with protein s deficiency. Docs didn't explain too much about it. Was just wondering if anyone on here...

Hi i have obstetric APS but have since been diagnosed with protein s deficiency....

Lewchar18

•7 years ago

1 Reply

Soul Rebel here. Got a question: Is the warfarin adding all this extra weight on me? Does LMWH have the same side effects?

Since starting warfarin in 2009 I have put on a nasty 45 pounds. I have been working out 3/6 days a week and sometimes twice a day. I have gained some strength...

Since starting warfarin in 2009 I have put on a nasty 45 pounds. I have been wor...

SoulRebel-APS

•7 years ago

11 Replies

INR Crashing

My self checker showed me at 2.8 Thursday night, which means it was actually 2.3. They increased my warfrin to 10mg a day Friday, (so I'm one increased dose...

My self checker showed me at 2.8 Thursday night, which means it was actually 2....

Morganslone

•7 years ago

23 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2017

I want to loose weight!

Dropping lower & increasing Warfarin

Can APS go away or into remission? How about exercise and diet?

Anyone gone from warfarin to xarelto and back to warfarin?

Inr crashes

Professionals whom don't understand.

Link

Ct scans

DRVVT numbers

Pain

Advice needed

Its been a while hello all

Just got specialist appointment 😄

Micro clots

Functional medicine update

Arthritis

Hand turning blue

Micro clots

Warfarin stress

Daughter

APS awareness and treatment

Blood Transfusion and Hughes Syndrome

Temporal arthritis, any help appreciated

Link to Travel insurance

Aps

health insurance

health insurance

Protein s deficiency

Soul Rebel here. Got a question: Is the warfarin adding all this extra weight on me? Does LMWH have the same side effects?

INR Crashing

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