Aps

Hi I'm new to this group. I was diagnosed in 2007 with aps after I had lost my 4th baby . Iv gone on to have 4 beautiful kiddies . I'm now pregnant with baby no5 so I started my aspirin but I then had a very bad reaction to it and was in hospital for days I was so swollen it was unreal. So they stoped my aspirin and I'm now on heparin but I'm worried because with all my other pregnancies I was on both aspirin and heparin. As any of you ladies only ever been on heparin and all been okay with baby ect ??

Thank you x

4 Replies

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  • Hi Sarah - congratulations on the birth of your four little ones and now this pregnancy. I'm assuming you are under a high risk pregnancy unit where Hughes is well understood?

    Have you spoken to your Doctor about also taking Plaquenil as we have recently posted a couple of studies which have reported good results with using that in pregnancy. Good luck with this one, I'm sure someone will come along and answer your question specifically soon.

  • Hi there, welcome and well done. I was on Fragmin only for all of my pregnancies and did well. It is important to be under a consultant who fully understands Hughes Syndrome/APS. Where are you located? MaryF

  • Hi I'm in England. I'm just worried because I was on both with my other four pregnancies and this one I'm only on tinzaparin 7,000 unit. I'm trying to see if there is something I can use to replace the aspirin x

  • Please look at the pinned posts over on the right hand side, and scroll down until you see the recommended specialists, it goes through the UK area by area. MaryF

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