Hi advice please: Saw one of professor Hunts team yesterday for 3rd time, as always supportive and informative. Warfarin unstable so prescribed fargmin to inject when below 3, also suggested getting machine to test myself due to INR levels ever changing. Went to local anticoag clinic today who informed me that if I get machine they will not take my reading or dose me from it, they also said cannot see need to test me more than once a week and when on the rare occasion my INR goes over 4, no matter what St Thomas say they will just stop advise for a dose! When I said that St Thomas were the specialist in APS and I valued their opinion they informed me that whilst St Thomas may be good at research they were old fashioned in thier treatment (A statement I completely disagree with) and I was not the only person with APSvwho needed treatment and I was no different to others on Warfarin. Sorry for long post, I just feel despondent as feel ill when warfarin dips below 3.5! Any ideas pkease
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