Hi everyone. I've just been recently diagnosed is APS & also essential thrombocythemia (ET).
I had a clot in my leg which resulted in severe long term nerve dammage (loss of use of foot) & 90% of one on my muscles being removed.
Currently still on clexane & aspirin as a dual anticoagulation measure as my whole picture is complex. At 25 they are resistant to put me on warfarin but are searching for a warfarin-type drug. Remoroxabin (I think?!) has been mentioned... Is anyone else on anything like this.
I have no idea what to expect with this disease, it's pretty daunting reading lots of things on it. Anyone have any helpful tips or advice for me please?!