I will be making an appointment with my heme/oncologist for APS testing. I have already tEstee positive for Lupus Anticoagulant so even though I'm on warfarin, I know I have that. Before I started on warfarin, I was a terrible migraine sufferer. 3 to 4 per week that caused vomiting and extreme sensitivity to smells and lights. I was the one person in the office that had to request that others not use perfume or scented lotions (everyone just loves that gal, LOL). Anyway it was never a question if I had a headache; it was how bad was my headache. From the day I was diagnosed with Factor 5 Lieden thrombophelia and placed on warfarin it was like a miracle cure for my headaches. Even now I can tell when my levels are low because I will get a slight headache. It's amazing, I can eat dark chocolate and I can once again wear fragraces and even have MSG without fear of a headache. Am I correct that migraine is one of the symptoms of APS? The more I read this site, the more I'm convinced I have. I also have Lupus SLE. I appreciate how generous you all are with your knowledge and willingness to help. You have given me the tests to ask for but they wouldn't do them while I was in the hospital. The said to go back to my hemotologist for the tests.. I was also wondering if you have any information on an APS specialist in the Orange County area of Southern California. Another question I have is that I have been having a heck of a time staying out of the hospital due to pulmonary edema and congestive heart failure. Would that be more a Lupus thing or is that also common with APS?. I know, so many questions; I just want to get to the bottom of all my health issues. Thank you in advance for your kind responses.
Last edited by MaryF
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