Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,355 members • 10,542 posts

All posts for September 2016

Infection

Hi every one Wanted to know... Is bad infecion's a side effect from aps and also is any one else having joint pain??

Hi every one Wanted to know... Is bad infecion's a side effect from aps and als...

murphylotte

•8 years ago

21 Replies

Extensive Plaque build up in LAD from a CT Calcium Score Result

Hi: My Cholesterol test results have always been perfect. I am 71 and has treated Type 2 Diabetes for some 30 years. My blood pressure is perfect and well...

Hi: My Cholesterol test results have always been perfect. I am 71 and has treat...

nnchin1

•8 years ago

10 Replies

Hairloss

Hi all, just wondered if anyone else has had any hair loss with Plaquenil. I can't think of anything else that might cause this.my hairdresser has noticed the...

Hi all, just wondered if anyone else has had any hair loss with Plaquenil. I can...

Elfie1

•8 years ago

13 Replies

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Professor Graham Hughes' Monthly Blog August 2016

BLOG August 2016 What a beautiful August! And what a difference a month makes! I generally regard August as early Autumn rather than summer. Not this year!...

BLOG August 2016 What a beautiful August! And what a difference a month makes!...

MaryF

Administrator•8 years ago

7 Replies

one week on rivaroxoban

after talking with my GP after my last INR test, my levels have been unstable and I felt unwell My GP suggested that Rivaroxoban would be a good alternative...

after talking with my GP after my last INR test, my levels have been unstable a...

rolfe

•8 years ago

6 Replies

Sticky Blood and BHRT

Hi there! Just wondering if anyone with sticky blood has any experience of BHRT? Would love to hear from you. Thanks, Honey monster

Hi there! Just wondering if anyone with sticky blood has any experience of BHRT?...

Honeymonster

•8 years ago

2 Replies

Looking for some help, feeling very lonely

Hello everyone, It's my first time here. I'm a 30 year old man and I'm Just looking for some help and answers in what has been a tough few months. Over the...

Hello everyone, It's my first time here. I'm a 30 year old man and I'm Just look...

OB1k

•8 years ago

14 Replies

Lucentis Treatment/Macular Degeneration/Warfarin

Has anybody had the Lucentis injections/treatment for Degeneration etc. I have had 2 retinal vein occlusions that have left me with Mac.Deg. I keep an INR 3-4,...

Has anybody had the Lucentis injections/treatment for Degeneration etc. I have h...

Zamalek

•8 years ago

7 Replies

Workout for LA postive

I am a male and LA positive. My deep veins in my right leg are all blocked with clots. I take Coumadin. I have had been told by my Dr.'s that under heavy...

I am a male and LA positive. My deep veins in my right leg are all blocked with...

DaCoach

•8 years ago

13 Replies

Hi I'm budleigh

I just posted but it was under me then I said from budleigh I look forward to chatting to you all soon

I just posted but it was under me then I said from budleigh I look forward to ch...

Budleigh

•8 years ago

15 Replies

Medical insurance

Hi has anyone had issues when changing medical insurance? I have been seeing Professor Hughes since 1999 but upon notifying them that I have an appointment...

Hi has anyone had issues when changing medical insurance? I have been seeing Pro...

Jolevans

•8 years ago

4 Replies

Last Hughes Syndrome Foundation's Patient's Day 2016

HSF sent me this over this morning for you all to have a look at, the film of the event:...

HSF sent me this over this morning for you all to have a look at, the film of t...

MaryF

Administrator•8 years ago

3 Replies

Pain Relief

Hi everyone. I haven't been on here for some time, I suppose time just flies by so thought I would ask you lovely people for your thoughts regarding pain...

Hi everyone. I haven't been on here for some time, I suppose time just flies by...

SammyJ

•8 years ago

7 Replies

For UK members a great programme on blood

The wonderful World of Blood with Dr Michael Mosley (this may be playable from other areas also) https://www.youtube.com/watch?v=4eB9Ct2QdvM MaryF

The wonderful World of Blood with Dr Michael Mosley (this may be playable from ...

MaryF

Administrator•8 years ago

7 Replies

Drinking red wine

Hallo everybody! In 2002 there was a wellknown Rheumatologist (who left Sweden for Australia) that suggested I should drink one glass of red wine for dinner....

Hallo everybody! In 2002 there was a wellknown Rheumatologist (who left Sweden ...

Lure2

•8 years ago

33 Replies

My first APS visit in Oct to london any TIP'S? 😕

Some doc's not impressed but you going ..gp giving me letter's so done my own file sent them over with blood test's ..with help from gp ...waiting on hosp...

Some doc's not impressed but you going ..gp giving me letter's so done my own ...

fitzyc

•8 years ago

1 Reply

Pradaxa (Dabigatran) V's Warfarin

Hi all Just wondering if anyone has made the switch from Warfarin to Pradaxa? My GP says I could be a candidate for it and it could be more advantageous for me...

Hi all Just wondering if anyone has made the switch from Warfarin to Pradaxa? My...

Linda72

•8 years ago

8 Replies

APS - No one knows

Hi All, I'm knew to the site. I was diagnosed with APS by chance after suffering an ectopic pregnancy, followed by 4 miscarriages (last one 1997) and many...

Hi All, I'm knew to the site. I was diagnosed with APS by chance after suffering...

Lias1864

•8 years ago

4 Replies

WAITING TO BE DIAGNOSED IS BRUTAL...

If you have ever wondered what it feels like to have an unseen disease, I will tell you. I am currently at work right now. I am attempting to type,...

If you have ever wondered what it feels like to have an unseen disease, I will t...

mclaurinkids

•8 years ago

7 Replies

Jumping vision.

I see my consultant next Thursday so will ask her opinion on this too. Does anyone have jumpy vision? It's quite difficult to explain. If I focus on anything...

I see my consultant next Thursday so will ask her opinion on this too. Does anyo...

Tinythepanda

•8 years ago

11 Replies

Update on blue stump!!! Lol... Sounds funny!!!

Went to doc yesterday all is good! Leg not fitting correctly and in fight of my life now with insurance company! They're getting rid of me after 25 years and...

Went to doc yesterday all is good! Leg not fitting correctly and in fight of my ...

Debbweb01

•8 years ago

1 Reply

My brain (or lack)

I've had a bad few weeks with brain fog. I saw both Haematologist and Rheumy today and explained that I had a small surgery about 3 weeks ago so had to stop...

I've had a bad few weeks with brain fog. I saw both Haematologist and Rheumy to...

Ozchick

•8 years ago

7 Replies

EYE STROKE not showing on MRI??

I was told by my eye doctor I had a stroke in my eye, but the MRI doesn't anything. I have pain in my eye mainly my left eye, blurred vision, light...

I was told by my eye doctor I had a stroke in my eye, but the MRI doesn't anythi...

Hidden

•8 years ago

8 Replies

Getting visibility for APS

I'm new to this blog and have family members with APS and/or symptoms but sero-negative. I'm also a health policy researcher and would like to write an article...

I'm new to this blog and have family members with APS and/or symptoms but sero-n...

Kjinnett

•8 years ago

7 Replies

From NJ, USA, are you?

Wittycjt

•8 years ago

10 Replies

Leg stump turning purple???

Hi from across the pond!!! Just a bit concerned, my left leg stump turning purple! It scared me because it brought back memories of my purple toes and them...

Hi from across the pond!!! Just a bit concerned, my left leg stump turning purpl...

Debbweb01

•8 years ago

12 Replies

Another few years along

So I've had APS for a number of years now and I've just been getting along with life, I used to see a specialist every few weeks but then she changed...

So I've had APS for a number of years now and I've just been getting along with ...

Tomcat

•8 years ago

8 Replies

Tired, Forgetful and Muddled Words.

Hello Everyone, It's been a while since I last posted, the past few weeks I have been struggling with chronic fatigue and forgetting my thoughts mid...

Hello Everyone, It's been a while since I last posted, the past few weeks I have...

bethw

•8 years ago

5 Replies

More info on rivaroxaban?

What does Prof Hunt have to say... I really admire her, straight forward and to the point. She answers all questions dignified and politely! And provides a...

What does Prof Hunt have to say... I really admire her, straight forward and to ...

Wittycjt

•8 years ago

11 Replies

Anything more from the Hughe's syndrome convention? Anything on YouTube yet?

Excited🤔

Wittycjt

•8 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2016

Infection

Extensive Plaque build up in LAD from a CT Calcium Score Result

Hairloss

Professor Graham Hughes' Monthly Blog August 2016

one week on rivaroxoban

Sticky Blood and BHRT

Looking for some help, feeling very lonely

Lucentis Treatment/Macular Degeneration/Warfarin

Workout for LA postive

Hi I'm budleigh

Medical insurance

Last Hughes Syndrome Foundation's Patient's Day 2016

Pain Relief

For UK members a great programme on blood

Drinking red wine

My first APS visit in Oct to london any TIP'S? 😕

Pradaxa (Dabigatran) V's Warfarin

APS - No one knows

WAITING TO BE DIAGNOSED IS BRUTAL...

Jumping vision.

Update on blue stump!!! Lol... Sounds funny!!!

My brain (or lack)

EYE STROKE not showing on MRI??

Getting visibility for APS

From NJ, USA, are you?

Leg stump turning purple???

Another few years along

Tired, Forgetful and Muddled Words.

More info on rivaroxaban?

Anything more from the Hughe's syndrome convention? Anything on YouTube yet?

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