Sticky Blood-Hughes Syndrome Support

EYE STROKE not showing on MRI??

I was told by my eye doctor I had a stroke in my eye, but the MRI doesn't anything. I have pain in my eye mainly my left eye, blurred vision, light sensitivity, my eyes dilate at their own convenience. I had a da-vinci surgery and was given 3 times the amount of anesthesia which has caused my blood pressure during surgery to drop quickly now I need to figure out how to get my eyes fixed.

8 Replies

I'm not really sure what you are asking?

Do you have APS? Are you on any anti coagulation? Perhaps if you give a bit more info and a location someone may be able to help you.


Hi, do you have a diagnosis of Hughes Syndrome/APS? MaryF


Again it is not clear whether you have APS, which is relevant. If you have APS and are anti-coagulated-and you had to discontinue meds and bridge prior to surgery there is reason to suspect you may indeed had some TIA or vascular event....secondary to a thrombosis....even if not and you have APS, you are describing symptoms of Ocular Migraine...which may have a strong vascular/oxygen either situation----an "eye stroke" suggests either an occulsion of an artery or vein in the retinal circulation....Ocular Migraine is related to cerebral causes generally and not intraocular NEED to a specialist Ophthalmologist quickly...should be someone who is a neurophthalmologist....


I hope you're ok, I can see this is alarming but please don't panic.

There are different options which you can follow.

First if you can get an appointment quickly, you can down to an opticians - such as a Boots or Vision Express. Any which is reputable and fairly large. This is because they will be able to examine you in the first instance with their equipment. It's also not going to cost too much and it can be done quickly - you won't have to wait for ages in A and E and yet you can be referred to the right department or A&E. Contact them and say you need to be seen by the optometrist as an emergency because of eye health issues. They will be able to examine your eyes using various specialist equipment (which is mostly the same as the equipment in hospital). They will then be able to identify possibly either the cause of the left eye problem, but definitely whether there are signs of issues in the eye and what the general issue is. with regard to the eye health specifically.

If needed they will write a report or letter for you to take to the Emergency Hospital or the relevant Hospital Department and tell you what your next step is.

Personally, I would recommend this approach if this is convenient and can be quickly done (as optometrists are specialists in eye health and have the same equipment as in eye hospitals they can often much more quickly identify the eye issue than, say a GP, who does not have the necessary equipment).

I would make sure, if possible you are accompanied by a family member of friend for emotional support. This is because while the optometrist has the knowledge and skills to be able to assess your eye quickly and efficiently, the opticians are usually a place where everyone else is not an emergency so it helps to have some moral support. Whilst in effect a lot of the tests they will do at the opticians are very similar to the tests at an Eye Department you may feel more reassured simply getting to an Eye Hospital in which case it would be worth doing that. If you feel that you would feel like you were delaying.

If you prefer you can go to the Emergency Department of your nearest hospital. This is good because they will be able to help you overall and be in a good position to see if there are links which are not identified between the different issues and which is the best way forward.

Or if you have an Eye Emergency Department in your area you can go to this.

Of course, in the Emergency Departments there will be quite long waits which can, when one has a worry an eye, cause you to worry even more. Again, if possible try to get someone to support you at the hospital for moral support.

Anything apparently serious which happens to your eye can be extremely worrying and alarming, and I believe eyes are perhaps more frightening than having many other parts of your body having a problem, they are so vital to everything that we do, so I totally see why this is alarming. There can be lots of causes and it is important you get the best help possible. It should also be noted that eyes can and do make excellent recoveries.

Please identify a person to help you if you can. Please consider attending Opticians and have a full eye health examination or attending A&E.

Let us know how you go....


I had this happen after cataract surgery. This is what led to the discovery that I have APS. My neuro-opthamologist ordered some blood tests when I saw him two months later. Damage to the optic nerve can be seen on pictures of the optic nerve taken in the specialist's office. I also developed glaucoma in that eye only. If you haven't had the blood test done get them as soon as possible. I am only on aspirin and have had very little improvement in the vision in that eye


Whether or not, you have APS is something you need to explore asap. But first, or in tandem, you need to see an ophthalmologist, preferably a neuro-ophthalmologist. They have truly amazing diagnostic equipment. I was found to have bleeds in one of my eyes, which was fixed rather easily with laser surgery (sounds scary, but really very simple).


Wishing you well. Please let us know how you get on if you would like to.


Yes, the communication is important on this site. So if you have got APS (?) please tell us how you get on as we learn so much from our own and members experiences and stories.

Best wishes from Kerstin in Stockholm


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