So I've had APS for a number of years now and I've just been getting along with life, I used to see a specialist every few weeks but then she changed specialties and her replacement was worse than awful. Since then I've just been talking to my doctor about my symptoms and he's managed to help me get my blood pressure under control again. After struggling for a few years with what I can only describe as agonizing back pains (horrendous leave me doubled over on the floor in pain, usually located around my right kidney) These where debilitating to say the least but would weirdly switch off if I got in just the right position, after mentioning this to my doctor he put me on Hydroxychloroquin and this has helped massively.
Been ok for the last 6 months or so but in the last few weeks I've had another couple of back pain flairups (even though I'm still taking the meds) and the last few days I've been as rough as hell, no energy, Ischemic attacks at least 6 or 7 times a day and generally feeling like road kill for most of the day. Usually when I have these flair ups I can just increase my steroid and aspirin intake for a few days until it settles down again but this time increasing it has done nothing.
I really need to see a specialist again but I've also just started a new job where I'm on three months trial, as such I cant really be taking time off to go see someone. Anyone any ideas?