APS - No one knows

[Lias1864]

Hi All, I'm knew to the site.

I was diagnosed with APS by chance after suffering an ectopic pregnancy, followed by 4 miscarriages (last one 1997) and many years of unsuccessful and very stressful treatment.

What I find annoying Is the lack of knowledge and understanding from some GPs. Most of my past GPs didn't seem to know what it is let alone how to treat it. I have just registered with a new doctor so here's hoping.

[MaryF Administrator]

HI, and welcome, where are you located as it would help your GP and yourself to have a guiding consultant with knowledge of the disease. MaryF

[Lias1864 in reply to MaryF]

Hi,

Isle of Man.

Lias1864

[MaryF Administrator in reply to Lias1864]

I read on the HSF Facebook page that a patient - Alison Shimmin, a former nurse, had leafleted the entire Isle of Man GP surgeries and also libraries with leaflets re Hughes Syndrome/APS. However I am guessing your nearest bit of main land is Cumbria so hopefully you can push for a referral to one of these it is your GP's interest to have help for you, as it will help them. Maybe you can track down Alison Shimmin for some support.

NHS Specialists

Professor Imelda Bates

Consultant Haematologist

Royal Liverpool Hospital

Prescott Street, Liverpool

Merseyside L7 8XP

Telephone: [phone]

Professor Ian Bruce

Rheumatology Clinical Lead

The Kellgren Centre of Rheumatology

Manchester Royal Infirmary

Oxford Road, Manchester M13 9WL

Telephone: [phone]

Dr Feroza Darwood

Consultant Obstetrics and Gynaecology

Department of Obstetrics and Gynaecology

Liverpool Women's Hospital

Crown Street, Liverpool

MerseysideL8 7SS

Telephone: [phone]

Professor Charles Hay

Consultant Haematologist

Department of Haematology

Manchester Royal Infirmary

Oxford Road, MachesterM13 9WL

Telephone: [phone]

Dr Rachel Gorodkin

Consultant Rheumatologist

Department of Rheumatology

Manchester Royal Infirmary

Oxford Road, MachesterM13 9WL

Telephone: [phone]

Professor Vanessa Martlew

Consultant Haematologist

Department of Haematology

Royal Liverpool University Hospital

Prescot Street, Liverpool

MerseysideL7 8XP

Telephone: [phone]

Dr StephenMcKew

Consultant Haematologist

Department of Blood Sciences

Countess

Chester Hospital

Liverpool Road

Cheshire CH2 1UL

Telephone: [phone]

Dr Andrew Will

Clinical Director

Deparment of Paediatric Hematology

Royal Manchester Children's Hospital

Oxford Road, Manchester M13 9WL

Telephone: [phone]

MaryF

[Lias1864 in reply to MaryF]

Thanks, will have a look to find her.