APS - No one knows

Hi All, I'm knew to the site.

I was diagnosed with APS by chance after suffering an ectopic pregnancy, followed by 4 miscarriages (last one 1997) and many years of unsuccessful and very stressful treatment.

What I find annoying Is the lack of knowledge and understanding from some GPs. Most of my past GPs didn't seem to know what it is let alone how to treat it. I have just registered with a new doctor so here's hoping.

4 Replies

oldest • newest
  • HI, and welcome, where are you located as it would help your GP and yourself to have a guiding consultant with knowledge of the disease. MaryF

  • Hi,

    Isle of Man.

    Lias1864

  • I read on the HSF Facebook page that a patient - Alison Shimmin, a former nurse, had leafleted the entire Isle of Man GP surgeries and also libraries with leaflets re Hughes Syndrome/APS. However I am guessing your nearest bit of main land is Cumbria so hopefully you can push for a referral to one of these it is your GP's interest to have help for you, as it will help them. Maybe you can track down Alison Shimmin for some support.

    NHS Specialists

    Professor Imelda Bates

    Consultant Haematologist

    Royal Liverpool Hospital

    Prescott Street, Liverpool

    Merseyside L7 8XP

    Telephone: 01517 0643

    Professor Ian Bruce

    Rheumatology Clinical Lead

    The Kellgren Centre of Rheumatology

    Manchester Royal Infirmary

    Oxford Road, Manchester M13 9WL

    Telephone: 0161 276 4357

    Dr Feroza Darwood

    Consultant Obstetrics and Gynaecology

    Department of Obstetrics and Gynaecology

    Liverpool Women's Hospital

    Crown Street, Liverpool

    MerseysideL8 7SS

    Telephone: 01517 089988

    Professor Charles Hay

    Consultant Haematologist

    Department of Haematology

    Manchester Royal Infirmary

    Oxford Road, MachesterM13 9WL

    Telephone: 01612 764801

    Dr Rachel Gorodkin

    Consultant Rheumatologist

    Department of Rheumatology

    Manchester Royal Infirmary

    Oxford Road, MachesterM13 9WL

    Telephone: 01612 761234

    Professor Vanessa Martlew

    Consultant Haematologist

    Department of Haematology

    Royal Liverpool University Hospital

    Prescot Street, Liverpool

    MerseysideL7 8XP

    Telephone: 01517 064322

    Dr StephenMcKew

    Consultant Haematologist

    Department of Blood Sciences

    Countess

    Chester Hospital

    Liverpool Road

    Cheshire CH2 1UL

    Telephone: 01244 365000

    Dr Andrew Will

    Clinical Director

    Deparment of Paediatric Hematology

    Royal Manchester Children's Hospital

    Oxford Road, Manchester M13 9WL

    Telephone: 0161 7018416

    MaryF

  • Thanks, will have a look to find her.

You may also like...