I was at the clinic today, she is excellent in her field especially APS. I've been on Fragmin x 2 10.000 units for a year. (But put back on waferin after a year as I got lost in the system ) & I told her what has been happening, (hair loss etc). I also told her that on the leaflet about Fragmin, all the do's & don'ts, and what I was experiencing was dangerous etc. But she completely excluded all the facts on the leaflets, said that it was not right, but at the same time she decicided to do all the tests that she said was "not right". (Confusing)?? Also I have a under active thyroid, which causes hair loss but my GP has just upt my thyroxine, bt I'm losing even more than ever.
While waiting in the waiting room, I got chatting to another APS suffer, she was telling me that although she was diagnosed with APS (without having any DVTs nor PE's), they found out that she had MS. She told me that some of the symptoms are quite similar to what I have, also some of the thyroid symptoms are similar, but she still has the APS disorder.
My mum has an autoimmune disease, I can't remember the exact name, The initials that start with "C, and it's auto neurological motor disorder, also she has Lupus, but no APS.
My doctors are baffled with all my elements, but I'm at wits end what is exactly wrong with me. My doctor at the hospital has just rang and told me the my D (something) is very high, (possibly a clot)? What is this D?