Sticky Blood-Hughes Syndrome Support


Hi has calcium levels anything to do with APS , had a routine health check at my Dr and he phoned me yesterday saying calcium below normal level . I eat well and thought I took enough calcium . Said he would repeat it in a week !!! My iron , B12 and D levels were ok . Struggling at the moment with the symptoms of APS , my professor put Warafrin up to 8 mg and I'm still just on the edge of 3 , feeling lousy , migraines , dizzy , nausea , vacant head etc etc 😞

6 Replies

Hi there.

Is the Professor you are seeing one from our list, see the pinned posts on the right.

From your symptoms they are how I would have been when my INR was only around 3.0, when I was on Warfarin, I'm now on Fragmin shots instead. Many of our members need an INR of between 3.5 and 4.0 to feel reasonably well. The dose of Warfarin is not what should govern things it is the INR level, so the dose needs to be sufficient to achieve the right target INR for you to feel well.



Hi, when was your vitamin D last checked and also your thyroid, at times with the Thyroid, patients can also have hyper parathyroid disease. You do need to check it out thoroughly...



I don't have a thyroid gland Mary , had it removed in 1991 due to cancer . Vitamin D levels were fine just calcium very low x


The para thyroids are a separate thing, I am going to ask a colleague of mine from TUK to answer you in more detail, as she has the expertise.... MaryF

1 like

Ok, the reply from my colleague who has also had her Thyroid removed;

The next step is to have her parathyroid hormone levels tested, particularly as her Vit D is normal. It's never normal to have below range calcium really, it must be discovered what causes it.

The most common cause of hypocalcemia is hypoparathyroidism, which occurs when the body secretes a less-than-average amount of parathyroid hormone (PTH). Low PTH levels lead to low calcium levels in your body. Hypoparathyroidism can be inherited, or it can be the result of surgical removal of the thyroid gland or cancer of the head and neck.

Other causes of hypocalcemia include:

not enough calcium or vitamin D in your diet


some medications, such as phenytoin (Dilantin), phenobarbital, and rifampin



intense exercise

irregular magnesium or phosphate levels

kidney disease

diarrhea, constipation, or other intestinal disorders that prevent your body from absorbing calcium properly

a phosphate or calcium infusion

cancer that’s spreading

diabetes in the mother, in the case of infants

Part 4 of 7: Risk factors

Who is at risk for hypocalcemia?

Risk Factors

People with a vitamin D or magnesium deficiency are at risk of hypocalcemia. Other risk factors include:

a history of gastrointestinal disorders


kidney failure

liver failure

anxiety disorders

I hope this helps... MaryF


Also just to rule out the obvious:



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