For some time now I have been getting to many headaches they will be very piercing and make me quite nauseous enough that I just cant complete any activities and end up going to sleep. No sort of pain relief works for me I have tried them. It has even lasted two weeks without giving me a break that was awful and still didn't respond to any pain relief I could provide. On the other hand I have also come across times when my memory is not bloody working right losing my marbles type of thing forgetting simple things misplacing things losing bank cards medical card to the point iv handed them to my mum to look after, I forget to take tablets unless someone reminds me, put food in the oven with no gas on until I take it out and see its still frozen. Also just yesterday I got tired like us lupies do so I had a lay down during that time I got really dizzy where it felt like the room was spinning I got up to get to my mum and seemed to stumble backwards like I couldn't control my balance and landed on my back crying for my mum to come (owwww).
However yesterday was my follow up outpatient appointment to st Thomas hospital lupus clinic and I only explained about my headaches and memory loss and there said they wasn't stressing there selves out with this as its nothing that didn't explain what may be causing it. However did give me the option of a brain scan MRI to reassure me, now I am (beeeeep) myself if there is anything that could possibly be wrong after all these symptoms they join together to seem like something is wrong with me bloody brain I also have Hughes syndrome the blood clotting disorder could this be connected at all. Has anyone on here been like myself and what was the outcome if not what can I expect any ideas of what could be causing it. Thanks for reading
P.S this has been posted on the lupus uk page to I have put it here as others with Hughes syndrome may relate to me