My GP and OBGYN know very little about Hughes Syndrome/APS and don't know who to refer me to. I have done my own research and have found some Hematologists at UT Southwestern in Dallas who are familiar with this disease. However, if anyone knows of a doc in the north Texas area they would recommend I would be most appreciative. I recently read Triona Holden's book "Positive Options for Antiphospholipid Syndrome" and was blown away. I have so many of the symptoms mentioned in all the case studies and NEVER knew they were related to Hughes Syndrome. I have struggled for years with low back pain, joint pain, foggy brain, memory loss, fatigue and the list goes on. I have more hope than ever hearing about how others have approached their diagnosis!
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