Who has had any luck with the list of insurers on the charity website?

[MaryF]

Just like last summer when I tried to insure my family by working through the list on the charity website - one again nobody will insure our family - once they make me work through the list of conditions... they all say no....any advice gratefully received!

MaryF

[lynzy]

Hi Mary

I got advised by my consultant to try Staysure, and whilst a bit on the pricey side just for myself, they insure me no problems, even with the conditions I have.

Hope this helps you

Take care

[MaryF Administrator in reply to lynzy]

Thank you. MaryF x

[jetjetjet]

Is this insurance only available in the U.K. or does anyone know of it in the states and if so where and maybe a cost ???????? thanks jet { no pun intended }

[Jayne54]

I always go through freedom insurance they are very good although because of my medical problems it's a high premium hope this helps xxx

[Soldanella]

Sorry about the slow response. I've had annual worldwide travel insurance with Saga for a number of years and after being diagnosed with APS and lupus they were happy to extend cover for an increased premium. I haven't found another company to quote a lower figure but I think this is probably due to the fact that I already had an annual policy with Saga prior to the APS diagnosis. However, earlier this year I was given the name of freedominsure.co.uk who are a specialist insurer covering lesser known conditions including Hughes syndrome and SLE. They gave me a quote which, at £335 for an annual worldwide policy, was a little more expensive than Saga but nevertheless better than other companies. Experience seems to tell me that once you have a policy it's worth renewing it each year because you are less likely to be penalised so heavily if you need to notify them about a new medical intervention. I've had companies refuse to provide cover because during the previous 1-2 years I've had routine follow-up appointments and referral to physio.

[MaryF Administrator in reply to Soldanella]

thank you very much MaryF

[Fra22-57]

I've been looking at week away to Rhodes and with my RA,APS and fibromyalgia and my husband's diabetic 2 was only quoted with the least company with allcleartravel.co.uk £56

Also another cheaper one is payingtoomuch.com

[Lure2 in reply to Fra22-57]

Hi again,

You have just started warfarin with an INR quite too low. It is perhaps not the best time to travel abroad before your INR is stabilized. I would not do it. Anyway talk with your APS-Specialist who understands this illness what his opinion is.

Kerstin in Stockholm

[Fra22-57]

Oh thanks Kirstin...your advise is valuable. I wont see my rheumatologist for few months as he's on leave but your advise sounds sensible.I was looking at going away for a break after my daughters wedding next week but maybe I will look for holiday in UK instead then.

Kind regards