London Hughes Support Group meeting - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,378 members10,571 posts

London Hughes Support Group meeting

YvonneW profile image
5 Replies

Hello!

This is just to let anyone who is interested know that the next meeting of the London Hughes Support Group will take place on Wednesday 30th April from 5.30 - 6.30pm in the Haemophilia Centre, 1st floor, north wing, St Thomas' Hospital. The topic has yet to be confirmed, but the last two meetings have been very interesting and both followed by general discussions.

Written by
YvonneW profile image
YvonneW
To view profiles and participate in discussions please or .
5 Replies
london-lass profile image
london-lass

Hi all

Thank you Yvonne for posting this.

The group is run so that every 3 months we have a formal meeting with a guest speaker. In between, at about every 6 weeks we have an informal meeting so folk can just come and chat. That is held in Riverside lounge in St Thomas from 5 to 7pm.

The next one will be March 19th. We would love to see anyone who is interested and can make it. Just to have coffee and share.

Keep well!

Blessings Ann

Suzypawz profile image
Suzypawz

Good luck with your meeting, I hope it goes really well :-D

Always great to meet others, let us knowhow it goes....& show pics of course! :-D xx

Tee hee! - I think the Christmas photos would be quite amusing, particularly Sophia and 'Clive'. I did like the way London Lass gave some mince pies to the ambulance drivers - she spreads happiness wherever she goes :) xx

windsorGirl profile image
windsorGirl

Hi London Hughes Support Group, I am very interested in this meeting. I live in Windsor and would find it Helpful for me to meet anyone Else who actually has Aps. I have only emailed a few people. I find it a little difficult to have anyone actually contact me from HughesUnlocked . I am not very good with the computer, am new.

windsorGirl profile image
windsorGirl

Thanks for all our support. Yeah right.

Not what you're looking for?

You may also like...

Azathioprine dose

First a little background: I have been on 200mg of Azathioprine, for a number of years. All that...

Might be diagnosed with Antiphospholipid Syndrome (APS)

Hi I previously in January 2023 was diagnosed with PE, the past year has been difficult and long...

A new discovery for potential treatment!

Light at the end of the blood thinner treatment tunnel? Just read this today:...

Coaguchex Xs test strips

Just wondering if anyone stores their test strips in the fridge, ? I never have but new pharmacy...

Heart Attack at 38

Hi, I first posted on the thyroid board but was sent here to check with the knowledgeable people...