Has anyone experienced a progression of symptoms for Unspecified Mixed Connective Tissue Disorder....?

I have APS and when I began to experience malaise and flu like symptoms again my Rheumy diagnosed Unspecified

Mixed COnnective Tissue Disorder....prescribed Plaquenil....in addition to the 320mg aspirin for APS...so far my tests appear ok....for both...get blood work every 90 days.....but I am curious as to what are physical symptoms I would have if the UCTD progressed?

[MaryF Administrator]

Hi, I have a few other things, and it took a while to work out which ones, I have systemic lupus, and probably have had for decades, but was stubbornly sero negative until recently, I also have sjogrens, psoriatic arthropathy and sub clinical hypo thyroidism. However although I do have flares, I had a lot more when consuming gluten! With my conditions it is hard at times to work out where one thing ends and another begins, they all irritate me in one way or another! It is good that your tests are being kept an eye on, as things will probably show up over time. MaryF x

[Hidden]

thank you

[overnighthearingloss]

Like Mary says, often people have a combination of different conditions.

I myself, tend to think that all may be related in some way but the missing link has not yet been identified.

The good thing is that there are some doctors who understand how best to treat these conditions. The challenge is to attempt to ensure that you are treated by the knowledgeable doctors and not by those who may inadvertently place you at greater risk.

[AnnNY]

It's possible for UCTD to progress to more lupus symptoms, which you can look up. But if you are on plaquinel it could stay the same or get better. There really is no telling. In my case I had a very long close to remission after the plaquinel had fully kicked in. My impression is that everyone's disease is different. My theory is not to worry about symptoms I don't have, just the ones I do have.