My wife (whose username I am posting under) is having issues with extreme tiredness. She is getting to the point now where she is unable to stay awake for more than about 4 hours per day without it being a massive effort, and this is obviously causing her a lot of distress.
I keep on telling her that it could be a flare of her APS but she is not sure if the symptoms she has matches the type of issues people have - hence this post. She complains of feeling extreme tiredness (in her bones, as she puts it) with a heavy feeling throughout her body. Sometimes she says that her blood feels like sludge and that it is even too much effort to get up to go to the loo. She also complains of tingly feelings in her hands from time to time and there is obviously a lot of mental and emotional distress going alongside this.
AFAIK she is in range (she is on warfarin life-long) and has no other major symptoms. She used to be on hydroxaquoraquin/Planaquil (unsure of spelling, sorry) but was taken off this about a year ago on advice from her heamo team.
Any ideas/support/suggestions, please?
Ryan (and Lorna!)