New to this site

[yorkshiregirl44]

No diagnosis of Hughes...i came across it and when i read more about it I thought getting other peoples opinions maybe of help.

Iv Hashimotos, underactive thyroid and crohns. Been feeling quite poorly for a while with muscle pain and weakness, fatigue, horrible brain fog and confusion, heat intolerance which is new to me, palpitaions and stopping breething when i am asleep amongst others.

I had some bloods taken a while ago and one of the tests was showing out of range,,this had never shown before and when i looked it up it could indicate sticky blood. Sorry i cant remmeber the name of the blood test.

Does my story sound familur to anyone....your advice and suggestions are greatly appreciated.

Thanks

[MaryF Administrator]

Hi there, if sticky blood was mentioned, the tests which will have been done are - hughes-syndrome.org/about-h... You need to ask whoever it is that suggested sticky blood to you if they have done this, and also the results, as it is absolutely crucial that you have the right medical advice and support. If they have mentioned it to you, as you said on TUK, then this just needs some fine tuning! MaryF x

[yorkshiregirl44 in reply to MaryF]

Hi and thanks, the blood test whcih i had was an elevated pits testwhich indicatedsticky blood.

[MaryF Administrator in reply to yorkshiregirl44]

Ok will have a look at the list and make sure you push for a referral to somebody in the area off the list above. This will make things easier for you. MaryF x

[yorkshiregirl44 in reply to MaryF]

Thanks...

[TJSTICKYBLOOD]

When I first was being investigated they thought I may have hashimotos but it did turn out to be sticky blood, I'm guessing the symptoms are similar. A lot of people with APS do have thyroid problems too. I have not experienced heat intolerance, heat makes me feel better but we are all different.

[yorkshiregirl44]

Hi and thanks, can you tellme what NCGS is. Also the blood test i had was an elevated Pits test which can indicate sticky blood.

[yorkshiregirl44]

Thanks i will have a look at the link.