Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for November 2013

Hughes: the "gift" that just keeps on giving.

hello My test results from St T's came back today. I am now testing positive to the antibeta2glycoprotein and the lupus anticoagulant. Formerly it was "just"...

hello My test results from St T's came back today. I am now testing positive to ...

stillwaiting

•10 years ago

11 Replies

Starting heparin and warfarin tomorrow - what can I expect?

After a stroke 8 years ago and several years of feeling increasingly I'll I've finally had SLE with secondary APS and Reynaulds confirmed. Bloods done in June...

After a stroke 8 years ago and several years of feeling increasingly I'll I've f...

Bonnie39

•10 years ago

3 Replies

Does anyone get sore throat and feel they have a virus?

Every winter I get sore throats and feel like I have a cold coming but mostly it comes to nothing and the doctor will say my throat looks fine. Been like this...

Every winter I get sore throats and feel like I have a cold coming but mostly it...

panda60

•10 years ago

6 Replies

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Hospital Visit

I took myself to the hospital A&E yesterday after blood blister developed on head a week ago and the pain still had not gone.. No appointment. Rushed through...

I took myself to the hospital A&E yesterday after blood blister developed on hea...

crista1

•10 years ago

14 Replies

What is a pinned post

I have just tried to submit a post. It said that the post had been pinned by the community admins and now I cant find it

I have just tried to submit a post. It said that the post had been pinned by the...

overnighthearingloss

•10 years ago

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I was 8 weeks pregnant when I had a miscarriage about 2 weeks ago. Since then, I have had symptoms that I'm not sure if they are normal.

I had to have a D&C to have the left over tissues and stuff removed. I go back to the doctor in 2 weeks for a check-up, but wondering if I should be concerned...

I had to have a D&C to have the left over tissues and stuff removed. I go back t...

Emily14

•10 years ago

3 Replies

Negative bloodtest.

I have been testing positive with beta2glycoprotein for 4 years. My test a few weeks ago, was negative Who is that possible?

I have been testing positive with beta2glycoprotein for 4 years. My test a few w...

Tessan0221

•10 years ago

2 Replies

Any body else find they didn't really feel major symptoms till after a Hughes-induced episode?

So, I used to get migraines in my teens but then reallly nowt that seemed a major issue till 3 miscarriages and a stroke after the birth of the Small; but,...

So, I used to get migraines in my teens but then reallly nowt that seemed a majo...

Eliza_E

•10 years ago

3 Replies

Calf Pain

I recently returned to work following my left knee arthoscopy, and since my job is somewhat physical, I assumed the calf pain (below right knee) was due to the...

I recently returned to work following my left knee arthoscopy, and since my job ...

momtomany

•10 years ago

14 Replies

Off to get my hip replaced. .

. . . at Duke on Monday. I have bridged from warfarin to lovanox and I wanted to say THANKS!! to all who manage and contribute to this site. I remembered the...

. . . at Duke on Monday. I have bridged from warfarin to lovanox and I wanted t...

GinaD

•10 years ago

14 Replies

Getting there with my eye problem

After a mixture of NHS and private appointments I am now nearer to a diagnosis of what is causing the pain and discomfort in my eye. Having an MRI to rule out...

After a mixture of NHS and private appointments I am now nearer to a diagnosis o...

panda60

•10 years ago

6 Replies

Hi all-ive been having dizzy spells the last week,but today ive woken up and i just cant get my balance and vision right...

Im waiting for a gp to call back,the only wayi can describe it is like someone has spun me round and my eyes feel like pressure in them,and they are blurredn i...

Im waiting for a gp to call back,the only wayi can describe it is like someone h...

emmaj

•11 years ago

21 Replies

Patients who are being discharged with APS, & other auto immune conditions at St Thomas's. Petition Please sign.

Hi, for those who have not seen the ongoing Petition on the forum. Patients at St Thomas's are being discharged back to their GP's leaving patients without...

Hi, for those who have not seen the ongoing Petition on the forum. Patients at S...

bernieembleton

•11 years ago

Be the first to reply

Gluten free? Coeliac? A great read!

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3705319/ Mary F x

MaryF

Administrator•11 years ago

4 Replies

Flight socks......are they all the same?

Afternoon all, my children ( well adults now) are becoming jet setters, off to New Zealand and Thailand next year. I wanted to buy them some flight socks but...

Afternoon all, my children ( well adults now) are becoming jet setters, off to N...

tiredmum

•11 years ago

7 Replies

Has anyone tried the 3 week heparin/fragmin trial?

Hi everyone, I am starting fragmin tomorrow, I'm nervous about injecting myself but excited that this could give me my life back. I have been on plavix for...

Hi everyone, I am starting fragmin tomorrow, I'm nervous about injecting myself...

EllaRuby

•11 years ago

13 Replies

A quick hello - I may not be so quick to answer stuff for a while!

Hi guys.. I have very precarious internet cover, with special rural set up where I live, however the storm almost finished it off, as the signal is bounced...

Hi guys.. I have very precarious internet cover, with special rural set up where...

MaryF

Administrator•11 years ago

8 Replies

HS and surgery: no medication? I'm worried...

Hello everyone. Did anyone ever had an operation while diagnosed HS? Did you get medication like heparin or aspirin? I am Dutch and curious about how this...

Hello everyone. Did anyone ever had an operation while diagnosed HS? Did you get...

Jippie

•11 years ago

9 Replies

My eye problem

Thanks to everyone who responded to my post asking if anyone suffers eye problems. Sorry it has to be a group reply but can only use my ipad for short periods...

Thanks to everyone who responded to my post asking if anyone suffers eye problem...

panda60

•11 years ago

1 Reply

Seeing Sheena :)

Been and seen Sheena last night, was lovely to see her so happy, congrats hunny, love ya :) xx

Been and seen Sheena last night, was lovely to see her so happy, congrats hunny,...

Suzypawz

•11 years ago

2 Replies

Anybody have experience of surgery while on warfarin?

I am hoping to have some elective surgery but am beginning to stress about how it would work when on warfarin. Has anybody had surgery and what did you do...

I am hoping to have some elective surgery but am beginning to stress about how i...

Jade

•11 years ago

12 Replies

Anyone using ESBRIET for I.P.F. or COPD ?

helpmysister

•11 years ago

9 Replies

A five hour lunch with APsnotFab

I am having a brief break in London, catching up with friends and family. Today I trotted through torrential showers to meet APsnotFab for a five hour lunch -...

I am having a brief break in London, catching up with friends and family. Today...

MaryF

Administrator•11 years ago

8 Replies

our son has arrived and post-pregnancy question

Hi all, 2 weeks ago our son has been born after an APS pregnancy with aspirin till 36 weeks and heparin from 6 weeks into the pregnancy till 6 weeks after...

Hi all, 2 weeks ago our son has been born after an APS pregnancy with aspirin ti...

Flyingdutchie

•11 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2013

Hughes: the "gift" that just keeps on giving.

Starting heparin and warfarin tomorrow - what can I expect?

Does anyone get sore throat and feel they have a virus?

Hospital Visit

What is a pinned post

I was 8 weeks pregnant when I had a miscarriage about 2 weeks ago. Since then, I have had symptoms that I'm not sure if they are normal.

Negative bloodtest.

Any body else find they didn't really feel major symptoms till after a Hughes-induced episode?

Calf Pain

Off to get my hip replaced. .

Getting there with my eye problem

Hi all-ive been having dizzy spells the last week,but today ive woken up and i just cant get my balance and vision right...

Patients who are being discharged with APS, & other auto immune conditions at St Thomas's. Petition Please sign.

Gluten free? Coeliac? A great read!

Flight socks......are they all the same?

Has anyone tried the 3 week heparin/fragmin trial?

A quick hello - I may not be so quick to answer stuff for a while!

HS and surgery: no medication? I'm worried...

My eye problem

Seeing Sheena :)

Anybody have experience of surgery while on warfarin?

Anyone using ESBRIET for I.P.F. or COPD ?

A five hour lunch with APsnotFab

our son has arrived and post-pregnancy question

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