I’m looking after someone with PSP, symptoms started 2019/20, diagnosed 2021. Due to increasing mobility problems, he’s had a couple of accidents when he couldn’t get to the toilet in time. Just urine so far. Looking for advice & suggestions for incontinence pads. We’re in the London (UK) area.
Many thanks
Ask the person’s gp to refer them to continence services then they will get pads free of charge. It might be a bit of a wait but worth it in the end.
I’ve been getting pull ups for my husband from Home Bargains. I order them online in bulk and they deliver quickly. Much cheaper than a lot of places and just as good.
Hi Toots52, yes in touch with (through your GP) with Bladder & Bowel services. They will normally visit you at home show you the pads they provide & the stretch pants also. I've now gone from my husband wearing the pads to a Conveen with a leg bag & a bedside bag ( for nightime use) only because it's more convenient for me / him. He is nearly 4 years into PSP now but probably had it a year or so before diagnosis/ mis diagnosed for a year. What part of london are you in? I'm in Bromley.Wishing you well ❤
Thanks Autumnstone. I’m in south west London
Hello there
We had similar problems and our district nurse prescribed a Conveen.
This is an external catheter which is fitted in a similar way to a sheath. Urine then passes into a bag strapped to a leg. We found this was invaluable, it reduced accidents and falls when struggling to get to the loo.
One trick is getting the right length tube, my husband was a 6 footer so we found the longer length was better as it stopped it being pulled off.
Hope this helps
Keep on keeping on
Anne
Hi Toots52, I agree my husband has just been prescribed a Conveen , there are various types. A Nightingale Nurse came and explained it all and advised how to use it. A real game changer. Takes a bit to get your head around but well worth it. Good luck . Take care of yourself too
Jen295
Many thanks to everyone for their helpful advice. I’ve asked the GP to refer to the incontinence service and may meanwhile look at pads, also encourage him to use a urine bottle whilst in his chair daytimes. He uses one of those ok, with a few spills, at night.
The GP option is the best one, but the local councils support teams are also good at activating this sort of access if you get any problems.
Incontinence
Urinary Incontinence
Incontinence supplies
Incontinence Problems 
