Incontinence pads: advice please

I’m looking after someone with PSP, symptoms started 2019/20, diagnosed 2021. Due to increasing mobility problems, he’s had a couple of accidents when he couldn’t get to the toilet in time. Just urine so far. Looking for advice & suggestions for incontinence pads. We’re in the London (UK) area.

Many thanks

[Redjune1]

Ask the person’s gp to refer them to continence services then they will get pads free of charge. It might be a bit of a wait but worth it in the end.

I’ve been getting pull ups for my husband from Home Bargains. I order them online in bulk and they deliver quickly. Much cheaper than a lot of places and just as good.

[Autumnstone]

Hi Toots52, yes in touch with (through your GP) with Bladder & Bowel services. They will normally visit you at home show you the pads they provide & the stretch pants also. I've now gone from my husband wearing the pads to a Conveen with a leg bag & a bedside bag ( for nightime use) only because it's more convenient for me / him. He is nearly 4 years into PSP now but probably had it a year or so before diagnosis/ mis diagnosed for a year. What part of london are you in? I'm in Bromley.Wishing you well ❤

[Hidden in reply to Autumnstone]

Thanks Autumnstone. I’m in south west London

[AnneandChris]

Hello there

We had similar problems and our district nurse prescribed a Conveen.

This is an external catheter which is fitted in a similar way to a sheath. Urine then passes into a bag strapped to a leg. We found this was invaluable, it reduced accidents and falls when struggling to get to the loo.

One trick is getting the right length tube, my husband was a 6 footer so we found the longer length was better as it stopped it being pulled off.

Hope this helps

Keep on keeping on

Anne

[Jen295]

Hi Toots52, I agree my husband has just been prescribed a Conveen , there are various types. A Nightingale Nurse came and explained it all and advised how to use it. A real game changer. Takes a bit to get your head around but well worth it. Good luck . Take care of yourself too

Jen295

[Hidden]

Many thanks to everyone for their helpful advice. I’ve asked the GP to refer to the incontinence service and may meanwhile look at pads, also encourage him to use a urine bottle whilst in his chair daytimes. He uses one of those ok, with a few spills, at night.

[Ratcliffe]

The GP option is the best one, but the local councils support teams are also good at activating this sort of access if you get any problems.