husband diagnosed with PSP

[Bella9999]

My husband had a bleed to the brain 5 years ago and fell causing a traumatic brain injury, over the years his mobility has got worse, his memory isn’t good and he can’t remember where the bedroom or toilet is. I put it all down to his brain injury, had a face to face appointment with his neurologist for the first time in 4 years and he has diagnosed my husband with PSP.

I have never heard of this and the doctor gave me PSP web details, to be honest I’m a little overwhelmed and any help and advise would be appreciated.

[Sun-flowerwearer]

hi Bella9999 ..I posted like you in May saying my husband had been diagnosed with PSP. It’s a really devastating when you begin googling and researching what PSP is and what it will mean in the weeks, months and years ahead. It is worth spending an hour scrolling through numerous posts here too as there is lots of valuable and insightful information from the group that live with this day to day. It is overwhelming and it gets more overwhelming as you go along….well it has for me. There are common symptoms that most PSP sufferers experience and some a little less common and it seems everyone presents their symptoms at different times so it’s almost impossible to work out how far along the journey you and your husband are.

Welcome to the group x

[REOC]

yes, it seems to be an unknown how it progresses. I think we just have to respond to whatever presents as best we can, and get as much help and support as we can. It’s a cruel disease and is not helped by the sufferer becoming uncommunicative. Keep posting on here and talking to people.

[Kelmisty]

My first place to speak about mum’s diagnosis was the PSPA, but I rang their helpline to discuss.

It’s a tough illness to understand no matter what route you discover it.

❤️

[Troubleandstrife]

Take advice and gather information as you need it. All at once can be overwhelming and each individual PSP experience is unique. Love your guy. Love yourself. Have patience with both of you. Seek and accept support because doing it all alone can break you.