Sadly, my mum, aged 73 passed away peacefully on Thursday, 12 days without food and fluids. I was by her side everyday and I hope that being there gave her some comfort.
The illness stole her voice and mobility and caused her much frustration. Her nursing home were excellent and we were so lucky to have wonderful care staff throughout.
I will remember mum fondly, she really was the best you could ever ask for and I will everything she taught me, the adventures we had and will treasure our wonderful memories.
Sending strength to others who are hit by corticobasal degeneration which is often misdiagnosed by healthcare professionals. This group has been a good source of information and support. I’m happy to answer questions to help others and will remain in the group.
Rest in peace Mum. Fly high with your loved ones x
(Photo Xmas 2021)
Written by
broadie79
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Dear Broadie, That's a beautiful photo to treasure along with your lovely memories. I am sure that being with her gave her comfort. I have messaged you privately. For now love to you and your family at this time. Love AliBee
As sad and difficult as it was, what a gift for you both that you were able to be together for those 12 days. May you find some comfort and peace knowing that your Mom is no longer suffering. Big hug, Purrlie
I'm so very sorry for your loss. She sounds like she was a wonderful mother and friend to you. What a beautiful photo you shared with us, thank you for that. Her suffering is over and now she is forever in peace and lives on in your heart. ❤️
I am sorry to hear about your mum, what a beautiful photo of you both. My thoughts are with you. Thank you for sending strength during such a difficult time. Take Care.
So sorry to hear about your mum. My mum is also 73 with CBD. Speech and mobility gone apart from the odd “yes, no, okay”. She can still eat but has had a few choking incidents. Awful disease and I’ve found that there’s little help around especially with the neurologist my mother sees twice a year. Thinking of you at this sad time x
Hi, lots of similarities, sorry to hear this has affected your family too. If only there was a cure or treatment. Hold her close and give her the love and support she needs. Where are you from? If I can help at all feel free to message.
I'm so sorry for all that you have been through with this dreadful condition and for the loss of your mom. I can't imagine how difficult those 12 days must have been! I'm sure there's a modicum of comfort in knowing that your mom is at peace now and life for you can go on. This is a great picture of both you and your mom and your mom looks quite good here.
I hope I'm not being insensitive by asking you questions at this sad time. If so, I do apologize.
May I ask when your mom was diagnosed and how long she had to struggle with CBD? My husband was officially diagnosed 4 years ago, with symptoms 4 years prior to that, so I have been caregiving for 8 years now. He's lost the use of his left hand and arm, is delusional much of the time, speech is gibberish and makes no sense, and 3-4 nights a week he's agitated, roaming, and difficult to calm down. He still eats very well, although I do have to feed him. This is such an emotional rollercoaster for me and we have no children so I am the sole caregiver. There is so little information available with regard to this condition so I am grateful to have found this forum, even though I am "across the pond."
Bless you and may warm, loving memories comfort you at this sad time.
Hello, thank you for your message. I’m sorry you are also going through this with your loved one. Mum was diagnosed in 2015, so the last 7 years. The photo was a year before her passing, where she was requiring full care and assistance with weight bearing and feeding. Her loss of speech frustrated her and there were periods of upset and agitation. We did our best to support her but it is tiring, time consuming and expensive. I hope you can seek support from carers to give you a break when needed. Happy to answer any questions you may have. It’s 3 weeks now and Mums funeral is next week. I miss her so much xx
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