transfers: hello, does anyone have any... - PSP Association

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transfers

Rose1sunflower profile image
19 Replies

hello, does anyone have any experience in using a floor transfer turntable? My husband is over 15 stone and is finding if difficult instructing his legs and feet to move! I’m wondering if it will help when transferring him from bed to wheelchair for example. Comments and tips gratefully received. I will check in in with OT and Physio but interested in peoples experience with this problem. Thank you

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Rose1sunflower profile image
Rose1sunflower
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19 Replies
Millidog profile image
Millidog

healthunlocked.com/search/p... Rose 1 I don't have experience yet od such equipment but searched on this site for Sara Stedy which I believe does what you need. The link above should work but if not just search in the search bar for Sara Stedy and you'll find quite a few posts with useful info. Hope this helps . Gx

Rose1sunflower profile image
Rose1sunflower in reply to Millidog

thank youx

Sfen profile image
Sfen

Rose 1, I use a Sit To Stand to transfer my heavy husband from bed to chair etc. Diagnosed in 2018 and very stiff, he couldn’t remain at home without it. Must be able to hold on to bars and is pulled up by a sling around his back. Hope this is helpful

Rose1sunflower profile image
Rose1sunflower in reply to Sfen

yes it is very useful. Thank you for taking the time to respond

eaglet profile image
eaglet in reply to Sfen

This is what we use also. Little chance of him falling...

Martina_MP profile image
Martina_MP

We have been using a flat floor turntable (pivot disc) to transfer my wheelchair-bound mother for 3 years and have found it very useful, including for in and out of the car. The person assisting with the transfer puts one foot on the turntable to keep it still while helping the disabled person stand up (holding her under her armpits, or with a gait belt), and then uses the foot to turn the disc (maintaining a secure hold on the person). The discs are not expensive and we have several strategically placed. One in the TV room, one next to the bed, one in front of the toilet, and one in a hall where we transfer from one wheelchair to another, and one for the car. My mother can usually still bear some weight on her legs for a few seconds to help transfer, although she cannot stand on her own. She is not able to use her hands. She has lost weight so we can still manage to transfer her using the disc even when she cannot assist at all.

Rose1sunflower profile image
Rose1sunflower in reply to Martina_MP

Thank you Martina, really helpful to hear about it in use. I think this will help us. I had been wondering about a gait belt too. Appreciate your replying.

ncgardener799 profile image
ncgardener799

I have been using a gait belt for some time now to transfer my husband who has PSP. I purchased one that is a little wider than normal and has soft handles on the sides and back making it much easier to grasp when transferring or as assistive device for me to hold onto him when walking with his rollator. Also, has quick release buckle making it easier to attach and release belt when not in use. Hope this is helpful information for you.

Rose1sunflower profile image
Rose1sunflower in reply to ncgardener799

it is helpful, thank you! I will look that up.

Appreciate your replying.

messier profile image
messier

My mum is in a care home so I have not used these myself, but from observing and talking with the care home, the key criteria for deciding what to use depend on whether he can grip with one or both hands, and how much strength he has for standing. You don't say how tall or strong you are but you don't want to be taking any of the weight of a 15stone man on to you! Mum moved on from a Sara Stedy to a motorized belt lift once she couldn't pull herself or bear her weight reliably.

Rose1sunflower profile image
Rose1sunflower in reply to messier

Thank you, that is useful. We are similar heights but I am 5 stone lighter. He can use both hands at the moment (though this is changing). He can stand with help but it is moving his feet, the instructions to move don’t seem to get there!

Thank you for the information.

WifeLilyRose profile image
WifeLilyRose

My late husband ( PSP sufferer) was able to use a Sara Stedy for some time at home. It was authorised by the OT. I had full time 24 hr care at home but for safety it needed myself to assist the carer with its use as the disease progressed. He became completely bedbound for the last month of his life and never needed to use the hoist equipment which was provided for the advanced stage, for which I’m very grateful. These decisions which are very much about the carer’s health and safety as well as the patient’s ,need to be taken by the medical team locally, quickly with FORWARD planning. The patient’s condition can change very suddenly in all aspects and I made the mistake in the early days of buying pieces of equipment which were only used for a very short length of time, if at all.

I would advise discussing this with the PSP Helpline as very many medical professionals will have no knowledge of PSP. I was constantly fighting to see and update my husband’s care plan regularly which was very stressful, even with the support of the hospice outreach team.

Hope I’ve been helpful. Make sure you look after yourself. My husband died in August and I am only just recovering from burnout. Best wishes, Susanne. x

Rose1sunflower profile image
Rose1sunflower in reply to WifeLilyRose

Thank you Susanne. Really appreciate your replying and I’m sorry to hear that your husband died in August.

I am surprised at how quickly this is progressing . We have a new OT and I think we certainly have to do some forward planning, though my husband is unwilling or unable to see the necessities of this.

We are looking at having carers, though again he is not keen but there is only so much I can do. Thank you for the reminder of burnout. I hope you are gaining strength mentally and physically. Best wishes. .

Perrywrinkle profile image
Perrywrinkle

Hi Rose1sunflower, like Sven we also have a sit-to-stand, ordered by the O.T. My husband suffers from CBD and can no longer walk. He's also very heavy and I have a chronic rotator cuff problem, so can no longer lift him. I don't know the difference between what we have and a sara stedy, but I have a feeling they are very similar.

Rose1sunflower profile image
Rose1sunflower in reply to Perrywrinkle

Thank you for replying it is much appreciated

Sebuly14 profile image
Sebuly14

I tried the transfer disk with my husband. He was never comfortable using it. I did use Sara Stedy for transfers for 2 1/2 years for transfers. When he lost the ability to safely use the Sara Stedy, I used a Hoyer lift until he passed away. Hope this helps.

Rose1sunflower profile image
Rose1sunflower in reply to Sebuly14

Thank you for the information and the progression of aids as the condition demands.

Richard33 profile image
Richard33

Hi,

Here in the UK the OT from the hospice has got us two of these rotastands / saturn disks - or whatever they are called - for free

mobilitysmart.co.uk/etac-pa...

Etac Patient Turner.

We use them all around the house for transfers from bed to wheelchair and wheelchair to toilet etc. We have even taken one abroad to Ireland! Very easy to use. The patient must be able to hold themselves steady as you turn them, but their knees go into the pads to help them. (You do not use them to move a patient - the wheels are just when you want to move the machine.)

Richard 🙂

Rose1sunflower profile image
Rose1sunflower in reply to Richard33

Thank you for replying, that is very useful.

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