How are we still here ?

[MRSYafffle]

Bloody hell, still here, digging in ,being strong waiting for whatever is next.

Thankyou to everyone who opens their hearts and shares their experiences of PSP.

Today was a bad day, more the look on her face.

Tomorrow we go again ❤

[Soul-girl]

sending love ❤️ so so hard

[LuisRodicioRodicio]

A big hug.

Luck and courage. to go again.

Luis

[Lizzigator]

good morning MrsYaffle.

I am thinking of you and sending heartfelt support.

Libby x

[Catmum58]

Sorry to hear you are having a tough time.

[T-val]

I am saying that title almost every day now, it's so sad. I also had a bad night with mum up twice with diarrhoea, she looks exhausted and so frail but she's hanging on in there. Sending hugs and strength to get through this challenging time xx

[Wombatz]

Stay strong I realise I have a lot to come and want the strength you all have.

[daddyt]

Not every day is good... but there is good in every day. Sometimes you have to look a little harder.

Tim x

[Perrywrinkle in reply to daddyt]

daddyt, I enjoy reading your words. I think you must be a very wise, optimistic man.

[HARRADL in reply to daddyt]

Thank you for going there, Tim. As you well know, sometimes it can be so darn overwhelming. My heart goes out to all of those warriors experiencing this horrific disease, as well as the wonderful caregivers and support for managing and doing the best they can. Last Sunday when I was thinking just that - how will we get through this next and final part? (mom is in the last stage) Well, we laid down together for a wee nap and I can't tell you how wonderful it was when mom woke up with me there and she had the sweetest smile and glow of happiness to have me there. That said it all to me! Amazing how much more strength we can muster. A good sleep helps too Cheers to those sweet moments! Forever grateful.

[Runner333]

Every day is a fresh start! My husband and I have the covid virus. We have lasted a long time without it catching up to us. Hoping tomorrow will be easier than today for us all! Big hug!

[Willowden]

Sending a big hug to you. It’s such a rollercoaster of emotions.

[Cinderella80]

Oh sending you so much love and hugs. It is so tough but keep on going because we love them so much. You are a warrior and are so strong. Keep on going we can do it! 🌹🌷

[Martina_MP]

That is THE Question!

[Purrlie]

Sending a big hug and much love. Hoping you both have a good night. Purrlie

[Troubleandstrife]

I remember saying and thinking this. Often it made me feel angry. Not at my husband, but at the entire world. It's so hard.

[Dickwin]

MRSYafffle, thank you for the laugh and the cry that quickly followed it. I need a few minutes of self pity each day. Then I need to remind myself that my wife, who is the victim of the damned disease, is handling this with more strength and grace than I could ever muster.

[timbowPSP]

Hi Yaffle ... MRs Green woodpecker (Why?), This is a horrible thing to get. ... agreed - I am male 80, was diag 4.5 yrs ago, and so pissed off at specialist telling me nothing can be done, that I have followed my own instincts. With 'management' the symptoms are quite slow developing, and I have written up all that I have done - with advise: diet, exercise, supplements, and more. 3xA4 pages so too big to fit easy on here. Happy to send you copy if you'll allow me ur email address? Very best wishes and remember PSP = Please Stay Positive! Timbow Reply (0)