what’s the trouble with my eyes

[Possum99]

they water and they are tired

[Kayelless]

just went to a neuro opthamologist because of this. She said psp-ers don’t blink often enough so their eyes get really dry then water to wet the eyes. She suggested over the counter lubricated eye drops 4x daily. She also suggested OTC eye ointment at night but said most people think it’s too messy and they quit.

[LuisRodicioRodicio]

Hi Possum99!

These are our experiences. In any case consult an ophthalmologist and if possible with one who has experience in PSP patients.

• Dry eyes/watery eyes.

The first thing is to evaluate if there is any damage to the cornea.

Erosions in the cornea have been described that lead to a blinking higher than normal that leads to further irritation of the cornea (AJK2001).

If there is not a problema with cornea have in mind dry eyes is a classic problema and drops of artificial tears to the eyes or physiological serum upon request (more often as the disease progresses) is a good solution.

If you have problems applying the drops "Optrex spray" is an alternative. Also warm moist compresses help. Wash your hands beforehand and clean the eyelids with not irritating baby shampoo. and after use a gauze sterilized by each eye, moistened in physiological serum.

Attention. It can be also an allergic problem.

To improve the lubrication of the eye we have tested "Hycosan Extra" (Sodium hyaluronate 0.2%) (Aquoral is similar product) by applying it 3 times a day. It bothers a little in the first seconds after applying. Our experience has been positive and we have noticed that the internal redness of the eyelids has diminished.

For hydration,Systane Hydration UD helps but nothing really works for long. (Hound25).

Consulting an ophthalmologist who has experience in PSP is recommended.

Sebuly14 make this contribution for the problem of eye watering:

“The ophthalmologist said that the eyes of the patient were dry and the surface of his eyes was wrinkled from the dryness. The oil glands in his eyelids were also clogged. I treat his eyes every morning doing the following:

• Moist heat to his eyelids for 5 minutes to help clear the clogged oil glands

• Clean his eyelids with an eyelid cleaner

• Put drops in his eyes

I have been doing this for 2 years and it definitely helps. The ophthalmologist says his eyes are mush better.

This what Sebuly14 use:

- Optase Moist Heat Mask.

- Optase Eyelid Cleansing Wipes Preservative Free.

- Optase Dry Eye Intense Drops Preservative Free.”

• Clarity produces "photophobia" and irritation of the internal eyelids. The patient used sunglasses frequently and applied artificial tear drops or saline serum upon request (At least 3 times a day). Sometimes suffers headaches and eyes pain on afternoons. We suspect that the origin is photophobia. We usually neutralize them with paracetamol.

• In the morning the eyelids may appear "stuck". To avoid it put eye ointment in at night to help lubricant the eyes. It is also possible that the eye may not stay closed all night and it dries the corneas. The ointment is: 97% petroleum jelly and 3% mineral oil. Xialing or cod liver oil capsule can work also (Afar).

• Blurry eyes may be his not fully closing his eye when he is asleep. The lower part of corneas may be drying out. Are her eye tearing? If so an eye ointment in each eye at night would be good to protect the corneas. Hot compresses on the eyes as well. (Jeff166)

• Lizzigator_2022 suggest:”symptom as watery eyes are a sign or ‘dry eyes’ peculiarly which can make the eyes extremely uncomfortable. I use Optrex eye drops and apply it regularly through the day and my mother gets good relief from them and her eyes stop watering. Any off the shelf dry eye product will do the trick.”

• Railfan makes this contribution in 2022: ”The eyelid closure is called Blepharospasm. It is a symptom with PSP and may be quickly resolved on its own or it may last a bit. I have this myself. If I cannot open my eyelids then I use my fingers to push them up. PSP is a Movement Disorder and voluntary muscles are the most affected as they are controlled in the Midbrain. The Midbrain is one of the places that the Tau Neurofibrillary Tangles. The muscles that control the eyelids is above each eye. By pushing the eyelid up you push the bottom of that muscle up”.

• If the PSP patient complains about double vision and often sits with one hand over one eye…Millidog contribution in 2022: “There are usually specialists who can help by checking double /blurred vision and vertical and horizontal gaze and they can prescribe prisms. Once tested my husband was provided with a prism sticker for one eye lens and it works well. They provide this as a stick on as changes may occur in future and they invite him back every 3 months to check progress and will alter the prism perscription if required. This has made a massive difference and removes the double vision well.”

Hug and luck.

Luis

[Possum99]

I use Hylo day and Hylo night as prescribed by my doctor and my specialist optician after a Corneal transplant years ago. My specialist optician has checked for inward turned eyelashes. There where none?

[Possum99]

thanks for your reply