After the last PSP&CBD Ice Cream Challenge at the beginning of this month until July 17th, which was International Ice Cream Day (yes, there were two) I took a step back. This is my message for the Facebook groups: I wanted to let you know of my decision to step back from my PSP-CBD advocacy efforts. My books will continue to be a fundraising platform for the PSP-CBD non-profits. It has been two years and five months since my beloved Trish died. It has had such a profound effect on me. The damndemic was a living hell on me, as it was for all of us. Unable to hold Trish's celebration of life for over two years, dealing with my youngest and autistic son's mental health issues - planning for his future without me, missing my children and grandchildren... and then some. All these things have left this warrior in need of time for myself. Time to sit with and process my grief. Some days, it is overwhelming and threatens to consume me. Then, there is the beast - PSP, that keeps on taking and taking.
There is much healing to be done physically from my recent serious fall that resulted in pelvic fractures and a pulled groin. Time feels like a competition and I'm losing. I need to be right with myself, and that means taking the time to do so. I'm always available for and will respond to messages, as I have told others. And, oh yes, there is the fourth manuscript to edit still.
Blessings
Tim
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daddyt
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I had no idea you lost your beloved wife / partner Trish … I am so so sorry to hear al that you have been through .. I had one sim seriously ill with Covid and another had to have a heart valve replacement ( his mental health was also very poor after his divorce) .. I lost my job also . These events affected me badly and I found it hard to fight my own battle of CBD …. Then I read your post this morning and was so shocked to hear all you have had to deal with !! You are always so positive and upbeat ? I will keep you in my prayers Tim and rest up for.a bit . I hope you have good friends and family to talk to xxxx love from Belfast ❤️
Hi Tim…thanks so much for always sharing your positivity… it can’t have been easy. You’ve been a light in this group. I hope that taking time for you will help you heal.
I'm sorry to hear everything you've been through. Your posts are always great. I hope you find what you need and thank you for being such a great support to the community. Take care of yourself x
After all you have been through, the giving of yourself to promoting awareness of PSP/CBD , and supporting others on this forum, Tim you definitely need time for yourself. Time out to process everything and time to grieve.
I’m sending you lots of love and wishes that you will be able to have the time you need to reflect and look after yourself. Thank you for all your posts x
Darling Tim, you have done more than most, on this site, writing your books and making more people aware of this dreadful disease. Too right, it’s time for you now! Which, I suspect, means letting others take care of looking after you, for once.Thank you for all you have done and enjoy your “retirement”.
Dear Tim, you have been a great support to me and so many others, with your posts and your advocacy, thank you so much for it all. I hope you are able to rest and take time for you now, in which ever ways you need. Sending you all the love and best wishes, Sarah x
Dear Tim I had no idea what you have been dealing with in your life. You are so giving to others and supportive on here. Have a good rest, time for yourself, get back to nature. Love, hugs and best wishes.I will PM from time to time if that's ok
Thank you for your kinds words of support. The fourth book details my uncertain journey - the challenges, highs and lows, and all the baggage. And yes, it's okay to PM me, anyone can.
As all the others have said, your support, encouragement, and words of wisdom have meant so much to me and everyone. Take good care of yourself. You'll always be in our thoughts and prayers. Wishing you the best my friend.
Tim, You have a lot on your plate and I am very sorry to hear you had to deal with the death of your partner on top of your own PSP problems. That sounds so unfair.
Absolutely you must do whatever is best for you. You have already done so much for the PSP cause - I mean just how much ice cream can one man eat!
Hope you find moments for a cold beer and a fat cigar!
I must admit the idea of a cigar as a pleasant past time is long gone and probably illegal in most places. But nothing wrong with the odd vice at our age! Richard
You are wise, as always, Tim. I’m so sorry at what you have had to carry and remain in awe of your strength in fighting for us all as you have, with such creativity and humor. Take care. Grief needs to be faced, as you clearly know. Know that you are loved by more people than you will ever see. Peace, Sarah
Thank you Sarah. I know there is no way over, under, or around grief - the only way past it is through it. Some days, I don't know what's worse, PSP or the grieving process. I do know I'll be making home-made ice cream😋
If there has ever been a person more deserving of some R & R, I don't know of them. You have dealt with so many problems - the loss of wife being the biggest blow. Take some time and relax and grieve. You deserve some time to yourself.
Thank you Dick. A fall resulting in serious injuries was not what I had in mind for some R & R. It is what is, and I shall work through and the other issues as they come up.
Oh Tim, you are and have always been one of our fiercest warriors. I am truly sorry that life has been so hard. The PSP journey is not for the faint of heart, and I can't imagine piling all those other troubles as well. I hope you are possibly seeing someone to help talk through the grief. After losing John and the Covid isolation, I sought out help, it has done wonders for me. I do remember John taking an antidepressant, you may also want to check that out. John never acted depressed, but we figured - with PSP, how could you not be depressed? You must take care of Tim first. Should you feel up to it, please leave a quick note from time to time as to how you're doing. I think I can safely speak for all, that we will keep you in our prayers. ' Asking for help,
Thank you so much Alice. I've been on antidepressants from very early on with my PSP journey. I have read and have written much about grief in my fourth manuscript. I've realized that now is the time I must sit and work through it. And yes, I will ask for help when needed. Thank you for the prayers.
A warrior wears such a brave face that sometimes one forgets the body and soul needs rest to continue the fight. I wish for you a time of much needed rest, healing and look forward to hearing from you soon.
Hi Daddyt I don't think I've contacted you before but your knowledge & ongoing support to us all has been a light in the frequent dark days of battling with my husband Bob's PSP.I'm horrified that you've sustained such injuries from your recent fall.
Now is your time to direct your energies on healing not just physically but emotionally, mentally & spiritually
Tim We have so much to thank you for in this community. Myself you have given so much support to, you probably don't realise just how much a droll comment from yourself or a "like" has meant over the past few years.
You are absolutely right to take a step back and give yourself some time. The last thing you need as you recover from your fall is to feel pressure to "perform".
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