Introducing Miss August PSP Monthly....

[Richard33]

Ruth (62) enjoys camping and art…….

In truth she is clothed and there was no one around in the campsite and it has been VERY HOT in England….

We can just about manage the campervan at the moment but Ruth is waiting for a PEG to be fitted which I think will mean the end of that. (PEG is a big decision but she is determined to have one). And her speech is really hard to understand now so we just about muddle through with the whiteboard placed solidly in front of her.

Anyway, make hay while the sun shines and it has not stopped shining here yet….

Love to all my fellow PSP / CBD warriors xxx

[Zerachiel]

I do miss camping, we have a folding camper but haven't been out for a couple of years as it is getting too much to set up on my own.

Have a lovely break and keep on making memories.

[Richard33 in reply to Zerachiel]

We have had so much fun in our scruffy Mazda Bongo over the past 8 years... Richard

[AliBee1]

Good to hear that you two are still managing out and about. Love the photo. AliBee

[Richard33 in reply to AliBee1]

Thanks AliBee - really been a lovely summer here.x

[Kasenda]

Dear Richard, I hope having the PEG is not going to be the end of the things you love to do. It’s made life easier for us both . The end of choking on fluids and numerous infections. It’s easy to manage and I remember our days out when I would simply do the tube feed in the car and all sorts of places. We continued to go on our days out and holidays etc. In hot weather, I could make sure he was well hydrated.

So all the best to you both , and I hope you make many more happy memories in your camper van .

[Richard33 in reply to Kasenda]

Kasenda,That is good to hear about the PEG. I must admit I am a bit nervous about it, but maybe it won't mean the end of our adventures....

Richard

[Kasenda in reply to Richard33]

Dear Richard, it’s easy to do and takes 5 minutes 5 times a day. I try stick to the same time each day to make things easier. All the best.

[Richard33 in reply to Kasenda]

Ok - I guess that doesn't sound too bad.....😬

[Hdee]

Love it!!! Thanks for sharing a lovely happy picture x

[Richard33 in reply to Hdee]

I did ask Ruth if she minded! I promise....Richard

[LuisRodicioRodicio]

Hi Richard33 and Ruth!

A big hug and luck since you do not lack courage!

Luis

[Richard33 in reply to LuisRodicioRodicio]

Luis, I do worry that I am putting Ruth at risk taking her out in the campervan. But she does love it and we must keep trying to have fun while we can...

Richard

[LuisRodicioRodicio in reply to Richard33]

👍That's what I did. Looking for moments of happiness while you can is the best medicine!!.I encourage you to keep going and never feel guilty.

The disease itself will tell you when it's time to change your habits.

Hug and luck.

Luis

[Richard33 in reply to LuisRodicioRodicio]

Luis, Fine advice as always.

😀

[Heady]

Hi Richard, Steve never had a PEG, but I honestly don’t see why, especially in your own private van, why you can’t give Ruth her feeds from there. I understand the need for cleanliness, but you are in control of that, in your camper.Well Done, again, for giving Ruth every ounce of enjoyment that you possible can.

Forgive me, but please DONT forget yourself. PEG feeding will be yet another task for you to do, make sure something else is taken over by someone.

Sending big hug and much love

Lots of love

Anne

[Richard33 in reply to Heady]

Anne, I am a bit nervous about the extra responsibilities with the PEG, but hopefully I will get used to it. We will have to see and I will make sure I get extra help if I need it. All too conscious I must not overdo it (or the alcohol!)

Richard x

[Heady in reply to Richard33]

Correct answer, bar the last comment!!!!!!

[Richard33 in reply to Heady]

I try, I really do!! x😀

[timbowPSP]

What a great photo and news from you! My little Romahome left us a few years when my PSP bumped it into walls, and crashed wing mirrors. Now with a baby automatic and disabled test we had the freedom of outings but still miss the weekends away and 'off to Scotland', etc! A skinny full-body coolant in this heat is the paddling pool ... at the back. Please Stay Positive! TIM xx

[Richard33 in reply to timbowPSP]

Thanks Tim. It is just lovely to get away for the night - away from all those jobs at home etc..Richard

[AJK2001]

Great to see you enjoying life the best you both can and carrying on doing things. With the great attitude you both have I'm sure you will adapt to PEG feeding and not let it hold you back.

[Richard33 in reply to AJK2001]

Bit nervous about the PEG but Ruth has a lot left to give (and a grandchild on the way) so it is the right decision.Richard x

[Motts]

Love your photo ! Sending Hugs... Granni B

[Richard33 in reply to Motts]

Thanks Granni B - always love your contributions to this little ol' forum.Richard x

[Motts in reply to Richard33]

Same here!

[daddyt]

Love this.

Tim x

[Richard33 in reply to daddyt]

Thanks Tim. We need a bit of levity on this forum occasionally - all in the best possible taste! 😀

[SharonandRichard]

Loved your post, well done. Unfortunately we had to sell our caravan earlier in the year as it was getting too much for us to set up. I'd got the hang of towing ( which I was really proud of!), but the holidays just weren't the same My husband, Richard, has had a PEG for just over a year now. He made the decision earlier than some just so he didn't have to worry in the future. Fairly early on he started taking his medication through the tube, due to swallowing difficulties. Sadly he's just spent the last 10 Days in hospital due to a chest infection caused by him choking on phlegm. He's due to come home today and from now he's going to receive all his meals through the PEG to limit the chance of this happening again, albeit they it wasn't food that he choked on!

Hopefully we're off to Cyprus with our family next week to celebrate Richard's 70th!

His speech has deteriorated since being in hospital and I've made up alphabet sheets for him to help (he finds it hard to write now). He too used to enjoy painting and we have a shed full of art materials and paintings!

Oh well onwards and upwards, that's our story for now!! Enjoy your camping and days out 💕

[Richard33]

Sharon, I know what you mean - there is so much to do with the campervan - getting everything ready and then setting everything up when you get there.

I am sorry to hear about Richard being in hospital - that is our fear with Ruth and why we are getting a PEG before it becomes an emergency. But as you found it sadly is not 100% protection against chest problems.

I do so hope you get to Cyprus and all goes well.

Richard x