Weight loss: My husband has lost so much... - PSP Association

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Weight loss

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My husband has lost so much weight, he still eats lunch and dinner with a snack . You can see his ribs it is just so sad. Is this normal once he starts to loose weight?

5 Replies

Hi penny 1956!

In our case, he lost weight little by little.

Hug and luck.

Luis

caralime1956 profile image
caralime1956

Hi Penny, my husband gradually kept losing weight & was a shadow of his former self, from 13st down to less than 8st . I had to keep buying him new clothes. It's such an awful illness, he was only eating spoonfuls of food latterly & sadly passed away in Sept. He was sleeping alot & hadn't spoken for over a year but still had understanding but just not the same person for a long time that we all knew & loved. Best wishes to you on the journey. x

easterncedar profile image
easterncedar

Knowing this was likely, I really encouraged him to indulge his sweet tooth while he could, and he did get fairly stout for a while, but when he started to lose weight, it melted away very quickly. It's hard to watch, I know.

Nodbod profile image
Nodbod

Hi penny1956,So sorry to hear about your husband.

My dad started losing weight despite having cereal and a cooked breakfast sandwich, a light lunch and a ready meal in the evening every day since moving closer to us, this was over a period of around 8 months, so your husband's certainly not alone.

Debspottery1 profile image
Debspottery1

Sadly, the weight loss happens as the ability to eat meals normally diminishes. My husband has lost 125 lbs. He was a big guy 5 ft 11. Almost 300lbs when diagnosed 2016. He loved to eat. His freezing is a big problem as he tries to lift the food to his mouth, open his mouth, get the food in, chew and swallow. It can take hours to eat one meal. Now he is losing ability to suck liquids up a straw. He can't lift his head and chin to use a normal cup. We've tried a lot of special eating/drinking devices. Choking while eating is normal. Saliva increases as he anticipates eating. Sugar cravings have increased. He also has behaviors/tantrums over food issues- if I tell him he can't eat a whole bag of candy, for instance. He also looks like a bag of bones with little muscle tone, but he's still got arm strength. I use a food processor and puree a lot of his foods, which he complains about, but we get more success that way, as I can also include meds in the food if I need to.

I make extra broth to keep on hand and avoid the foods that cause choking such as ground beef. Smoothies are great as you can add protein powder to thicken. Pudding and

ice cream is a favorite. He can feed himself if food is creamy smooth- so I let him take as long as he likes, and it keeps him happy for a while. Keep your chin up!

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