PSP and eyes watering

[Antscerqua50]

Does anyone know what would help with my mums extremely watery eyes from PSP please ? They don’t seem to bother her but continuously watering it looks so uncomfortable 😣

[Lizzigator]

Hi there. My mother has the same symptom and watery eyes are a sign or ‘dry eyes’ peculiarly which can make the eyes extremely uncomfortable. I buy Optrex eye drops and apply it regularly through the day and my mother gets good relief from them and her eyes stop watering. Any off the shelf dry eye product will do the trick. Wishing you both good health.

Lx

[LuisRodicioRodicio]

Hi Antscerqua50!These are our experiences about eyes problems on PSP patient.

"The first thing is to evaluate if there is any damage to the cornea.

Erosions in the cornea have been described that lead to a blinking higher than normal that leads to further irritation of the cornea (AJK2001).

If there is not a problema with cornea have in mind dry eyes is a classic problema and drops of artificial tears to the eyes or physiological serum upon request (more often as the disease progresses) is a good solution.

If you have problems applying the drops "Optrex spray" is an alternative. Also warm moist compresses help. Wash your hands beforehand and clean the eyelids with not irritating baby shampoo. and after use a gauze sterilized by each eye, moistened in physiological serum.

Attention. It can be also an allergic problem.

To improve the lubrication of the eye we have tested "Hycosan Extra" (Sodium hyaluronate 0.2%) (Aquoral is similar product) by applying it 3 times a day. It bothers a little in the first seconds after applying. Our experience has been positive and we have noticed that the internal redness of the eyelids has diminished.

For hydration,Systane Hydration UD helps but nothing really works for long. (Hound25).

Consulting an ophthalmologist who has experience in PSP is recommended.

• Clarity produces "photophobia" and irritation of the internal eyelids. The patient used sunglasses frequently and applied artificial tear drops or saline serum upon request (At least 3 times a day). Sometimes suffers headaches and eyes pain on afternoons. We suspect that the origin is photophobia. We usually neutralize them with paracetamol.

•

• In the morning the eyelids may appear "stuck". To avoid it put eye ointment in at night to help lubricant the eyes. It is also possible that the eye may not stay closed all night and it dries the corneas. The ointment is: 97% petroleum jelly and 3% mineral oil. Xialing or cod liver oil capsule can work also (Afar).

•

• Blurry eyes may be his not fully closing his eye when he is asleep. The lower part of corneas may be drying out. Are her eye tearing? If so an eye ointment in each eye at night would be good to protect the corneas. Hot compresses on the eyes as well. (Jeff166)"

Interesting the Lizzigator suggestions.

Hug and luck

Luis

[AJK2001]

My Mum used Hyloforte drops in the daytime and an ointment at night which helped to some extent but her tear film had been disrupted and it wasn't until we saw a cornea specialist that they prescribed a course of antibiotics (it was some weird dosage, such as 3 days of tablets for 3 weeks) and reduced the amount of different drops she was using that we really saw any improvement. We also used an eye bag daily which helped keep the oils excreted by the eye lids mobile so helping keep the tear film in good condition.

[Nanny857]

Hi, my husband’s optician recommended Hyabak eye drops and our GP provided them on prescription. They definitely made a difference.

Nanny857xx

[oilman1]

My wife has the same symptoms and we have tried numerous eye doctors and all of their "remedies". In the end, nothing has worked, and she lives with needing a Kleenex for her eyes the whole day. This is now going on year three and it is probably the least of her worries as she has been on a relatively steep decline. Good luck and wishing you the best.

[David750]

Hi Antscerqua50, my wife's eyes watered, the optician noticed "scum" over the surface of her eyes and prescribed eyedrops that were quite thick like runny ointment to be applied at night to lubricate and remove the dirt. The cause was lack of blinking which we all do unconsciously but PSP patients can no longer as much. When they do there is more irritation, hence the watering.