My wife of 55 years passed away peacefully yesterday after a 4+ year battle with PSP. Her symptoms pretty well paralleled those of others with this same dreadful disease. Fortunately I was able to care for her at home. The last six months were a smoothie or liquid-only (thickened) diet, but choking really restricted her intake. She went from 130 to 87 pounds. She never wanted a PEG and I am grateful for that. I'm sorry that she was not willing to donate her brain for research. My advice to other caregivers is to prepare early for the next unfavorable stage of this disease, as it only gets worse as time goes on. ...Until, at the end, it is a blessing that they are finally at peace.
South Carolina, USA