My wife of 55 years passed away peacefully yesterday after a 4+ year battle with PSP. Her symptoms pretty well paralleled those of others with this same dreadful disease. Fortunately I was able to care for her at home. The last six months were a smoothie or liquid-only (thickened) diet, but choking really restricted her intake. She went from 130 to 87 pounds. She never wanted a PEG and I am grateful for that. I'm sorry that she was not willing to donate her brain for research. My advice to other caregivers is to prepare early for the next unfavorable stage of this disease, as it only gets worse as time goes on. ...Until, at the end, it is a blessing that they are finally at peace.
Gary Olin
South Carolina, USA
Written by
roseopsp
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My thoughts are with you. I agree totally with you about being prepared as the stages progress. I always felt that my husband would be on a plateau and then take a dive down to another which he could not rise from. Now it is time to take care of yourself so love and hugs AliBee
I’m sending you love and hugs as you miss and grieve for your wife. I hope her being at peace now can give you some comfort, please look after yourself as well as you looked after her xx
Sending our condolences and wishing you and your family peace and love at this difficult time. Know that your wife is free from this damned disease and take care of your self now.
I feel for you. My wife is 63 on a 2+ year battle with PSP and I am caring for her at home. The last 3 months have been on a puree diet only and choking is still a concern. She has gone from 130 to 90 pounds and does not want the PEG and I too am also grateful for that. She also is not willing to donate her brain even after my gentle persuasion. I feel that the end of her journey is coming soon, and I hope that it comes peacefully. Good luck on your next journey with life.
So sorry for your loss. I hope you are able to find some comfort knowing that your dear wife is no longer struggling with this truly awful disease. Sending big hugs, Purrlie
Sorry to hear the news. Well done for looking after her at home till the end. I need to take heed of your advice as my wife is moving into the later stages.Richard
Hi There, My thoughts are with you. I can appreciate your thoughts at this time. I lost my wife to PSP 7 months ago. You will receive strange thoughts in you quiet moments, usually before falling to sleep. I could hear my wife calling me as she used to. I now know this quite normal as the brain readjusts to loneliness.
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