Peace at last: My wife of 55 years passed... - PSP Association

PSP Association

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Peace at last

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My wife of 55 years passed away peacefully yesterday after a 4+ year battle with PSP. Her symptoms pretty well paralleled those of others with this same dreadful disease. Fortunately I was able to care for her at home. The last six months were a smoothie or liquid-only (thickened) diet, but choking really restricted her intake. She went from 130 to 87 pounds. She never wanted a PEG and I am grateful for that. I'm sorry that she was not willing to donate her brain for research. My advice to other caregivers is to prepare early for the next unfavorable stage of this disease, as it only gets worse as time goes on. ...Until, at the end, it is a blessing that they are finally at peace.

Gary Olin

South Carolina, USA

26 Replies

Love and hugs xx

My thoughts are with you. I agree totally with you about being prepared as the stages progress. I always felt that my husband would be on a plateau and then take a dive down to another which he could not rise from. Now it is time to take care of yourself so love and hugs AliBee

Dear Gary,My thoughts and prayers are with you. Thank you for sharing your story when everything must be so raw still.

Wishing you peace at your sad time.

Lx

I’m sending you love and hugs as you miss and grieve for your wife. I hope her being at peace now can give you some comfort, please look after yourself as well as you looked after her xx

Thinking of you xxx

Wishing you and your family peace and love.

A big hug.Luis

Blessings to you.

Sending hugs xx

So very sorry for your loss xx🙏🙏

So sorry for your loss. Sending warm hugs.

Sending hugs at this tough time

Condolences to you and your family. I'm praying God is with you during this time. And wife is free of her battles. God Bless

Yes, finally at peace. Strength and courage my friend. Alice

So sorry for your loss

Condolences and Hugs- May you find peace in the months ahead, and joy in the good memories you both shared.

Gary,

Sending our condolences and wishing you and your family peace and love at this difficult time. Know that your wife is free from this damned disease and take care of your self now.

Regards, Dick

So sorry for your loss

I feel for you. My wife is 63 on a 2+ year battle with PSP and I am caring for her at home. The last 3 months have been on a puree diet only and choking is still a concern. She has gone from 130 to 90 pounds and does not want the PEG and I too am also grateful for that. She also is not willing to donate her brain even after my gentle persuasion. I feel that the end of her journey is coming soon, and I hope that it comes peacefully. Good luck on your next journey with life.

Thank you for sharing. Sympathy to you and your family. xxxxxxxxxxx

So sorry for your loss. I hope you are able to find some comfort knowing that your dear wife is no longer struggling with this truly awful disease. Sending big hugs, Purrlie

So very sorry for your loss. Will keep you in my thoughts.

Sorry to hear the news. Well done for looking after her at home till the end. I need to take heed of your advice as my wife is moving into the later stages.Richard

Sending you love, so sorry for your loss. Xx

Awwww, I am so sorry to hear this ❤️ Hugs from Ohio - Kim

Hi There, My thoughts are with you. I can appreciate your thoughts at this time. I lost my wife to PSP 7 months ago. You will receive strange thoughts in you quiet moments, usually before falling to sleep. I could hear my wife calling me as she used to. I now know this quite normal as the brain readjusts to loneliness.

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