Black outs or falling in deep sleep

[Stephanielayell82]

My loved on whose diagnosed in 2015 with PSP. Is having difficulty swallowing big time starting to choke and asperating. But more recently have had what she is calling black outs. Just falling asleep randomly. Says she not tired but it is happening more now then before. Anyone else have this happening?

[Purrlie]

My husband would fall asleep very quickly, at any time of the day, often just after getting up in the morning and having a coffee, and especially when watching TV. It was not a question of being tired, although because he was having issues with his vision, I thought perhaps the eye strain was having an effect later in the day. He was doing that before he started to have issues with excess saliva and coughing and choking incidents. Not sure if this is of any help, but it is something we experienced too. Sending you both a big hug. Purrlie

[Stephanielayell82 in reply to Purrlie]

Thank you!!

[kjschy]

Hi, i start to give to my husband xadago(safinamide) for time off or black out moment. is already few months is with this medication and is working,for excess of saliva he takes glycopyrronium bromide and is working too

the specialist has to prescribe them because they are very expensive and gp will not prescribe them.

big hug

anna

[Stephanielayell82 in reply to kjschy]

Thank you for your response. Bless you and your loved one on this journey

[Martina_MP]

My mother falls asleep mid meal often (and lets her drink drop out of her mouth) for 15-20 minutes, or dozes on and off watching TV.

[Stephanielayell82 in reply to Martina_MP]

Thank you

[Ange57]

I have PSP diagnosed in 2019, from early on I have suffered with dreadful fatigue, now 3 years on its worse, I get up around 10AM for breakfast normally porridge with yoghurt the I’m so tired I normally go back to bed for two hours. Mostly it’s because of my eyes, they close automatically! Also my gaze is upwards I have great difficulty looking down. Just males me want to lie down and close my eyes. So I do and rest. I too can choke on anything but especially thin liquids - horrible. Stay strong.

[Stephanielayell82 in reply to Ange57]

I'm so sorry you are going through this awful disease. Yes she has complained of her eyes not being able to open when she try's to open them. The sad thing is when new things happen she dosen't mention it right away. And because we are all use to changes sometimes things go unnoticed. There is just so much to this disease and so many changes. I wish you the best on this journey. Thanks for your feed back.