Just thought I would like to let everyone know that John lost his battle with PSP last evening. At least he is free of this terrible disease. He was so strong and fought so hard, never once complaining. Pauline xx
John: Just thought I would like to let... - PSP Association
John
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Dickenson2
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Oh Pauline I am so sorry to hear this sad news, may he rest in peace, will see you when I am back from our break, sending you a massive hug Pauline. Yvonne xxxxx
Thank you Yvonne. See you soon xx
So sorry for your loss. This is truly a terrible disease
Thank you x
So sorry Pauline. His battle is over at last. Love from Jean x xx
Thank you Jean. I almost did feel relieved xx
Oh, Pauline
Thinking of you and wishing you light at this dark time.
Warmly
Kevin
xx
Thank you Kevin. We just got CHC . John all of a sudden had a ‘primary health need’ so they have only had to pay one month x
Hi Pauline
Well, at least you got something.
That was a long struggle too.
xx
So sorry to hear that John has died. May he rest in peace finally free from this evil disease.
Look after yourself now Pauline.
Sending big hug and much love
Lots of love
Anne
Thank you Anne . I am FINE xx
Glad to hear it Pauline, you will be alright knowing what FINE means!!!
Lots of love
Anne
Sending lots of love and hugs at this difficult time
Tippy xxx
Thank you so much x
You and your family have my deepest condolences. John is resting peacefully now.
Ron
Thank you x
So very sorry for your loss, my mum lost her fight on Tuesday morning xxx
Thank you like I said to Kevin I am almost relieved but devastated at losing him. We have spent three days and nights sitting in the home watching him deteriorate but he was so strong in the end x
I’m very sorry for your deep loss, Pauline. I know we are grateful our loved ones are finally freed, but it doesn’t change how final and devastating that sense of loss is for us.
Hugs for your grief. ❤️❤️❤️
Anne G.
Thank you x
So sorry for your loss, sending hugs Julie xx
Thank youJulie x
I’m so sorry. Please know you’re in our thoughts and prayers. John isn’t suffering anymore. Take care.
Cuttercat
Thank you x
Thank you x
So sorry for your loss. Sad times.
Free at last from this terrible disease.
Stay strong, he's still around you.
Sue xx
Dickenson2 in reply to
Thank you. Just want to get his face out of my head during the last few days and remember him as he was x
Thank you. He was just so peaceful and in no pain x
Sad news Pauline but he had suffered enough and I'm sure was ready to leave that suffering. I felt it was a blessing when Ben died he had had more than enough, know he was ready. Now you have to start the grieving which is very different for each of us who lost a loved one. Take care of yourself and don't let anyone tell you how it should be, it's your grief so do it your way.
Sending love
Kate xxxx
Thank you Katie. He just deteriorated so quickly. He was struggling to both eat and drink and his weight had dropped dramatically. Just hope I can remove the image from my head of the last few days. Pauline xx
Pauline, this sounds so familiar, Chris did the same. Tough to watch, but at least they are now flying free xx
Yes and although his swallow went he did not choke or have aspirational pneumonia and needed no medication as he was so calm x
It's the thing I struggle with the most but lots of folk seem to be abl to remember life as it was before PSP/ CBD, I'm waiting for that to return. It's all so personal as to how you react to the death of a loved one especially after such a terrible few, I hope you manage to remember before it took its hold.
Sending love and a big hug
Kate xx
Yes I hope so as he was such a beautiful person x. Hope we have a get together soon xx
I am so sorry to hear this and send you lots of virtual hugs. Take good care of yourself now as this grief thing is really hard too.
Love Sarahxxx
Yes I don’t have any family close by so sorting things by myself. I have family com8ng over the weekend but then all the official places including the undertaker are closed. However I do have some good friends who I will need when the fu real has taken place , Pauline x
Dear Pauline
So sorry to read this. We seem to have lost so many to PSP since Christmas. My thoughts are with you and your family at this sad time. But, as you say he is now free from this devastating disease.
Time to look after you now, take care.
Hugs
Anne
Been to some friends this pm for a couple of hours as I wanted a bit of normality x
Oh I so know what you mean. I'd got used to the routine of carers in, DN's visiting and either seeing or talking to our GP. The home feels so empty now, and whilst I've started to pick up my life again, I haven't yet settled. In fact I'm finding it difficult to do so; Chris died eight weeks ago today, so I suppose it is still early days.
So we must keep on keeping on.
Hugs
Anne
John unfortunately was in a nursing home so I am a little used to being on my own but Iwent into him every day sometimes two and three times. It is very new to you at the moment but I am going to try and be positive and take a leaf out of Headys book who is amazing xx
Thank you Pauline. But please do grief your way, it is the only way through.
Lots of love
Anne
Thanks Anne will try xx
A big hug.
Luis
Thank you. I need that as I am here on my own x
My sincere condolences to you. May he Rest In Peace. PSP really sucks. 😪💔😪🙏
Thank you x
My heart breaks for you. I am so very sorry for your loss - surround you with angels. ❤️
-Kim
It is hard to remember a time without PSP but like you we tried to always pack so much in and you look after your mother amazingly doing such fun things with her. She always looks so happy long may it last. Do remember everyone with the disease is different xxx
My deepest condolences to you. We just lost my mom to PSP last week. Even though we know it’s good for our loved ones to be free, it still hurts...a lot.
Yes I am so sorry for your loss. It is a really hard time but I know I have to look forward just dreading the funeral but hope to treat it as a celebration of his life. It would have been his birthday next Wednesday and sad he did not make it xx
Pauline, I am so sorry to hear this news. He is at peace and hopefully you are also.
Hugs,
Donna
Yes I think relieved is the answer xx
Hugs.
A sad, sorrowful time for you and your family. Your husband is free at last. My deepest sympathy,
Marilyn
Thank you xx
Sorry for your loss, but it is a horrible disease. Regards Caralime
I’m so sorry for your loss 💐
❤️
Thank you I shall miss him terribly but happy no more suffering xx
I am so sorry to hear of your loss. Hopefully soon your memories will be of how he used to be before the disease and not of his final days. That’s the goal for myself at the moment. So many emotions to sort through. Take care.
Thank you. I need to sort through some photos and remember what a good looking man he was and a lovely personality. He did not have a bad bone in his body xx
Sorry to hear of your loss. We know it’s coming but it’s still hard when it happens. I will be praying for you.
Thank you. You are so right. I never thought he would last the time he did xx
Dear Pauline, I am sorry to hear about John's passing. As you said some sense of relief is also there, as PSP is truly a terrible disease. I hope you can take the time to be with all that needs to be. a huge e-hug from London. With care. Antonella
Thank you. I love London and will be able to go in the future without worrying if John is ok xx
get in touch when you come to London <3
Love to x
Dear Pauline, so sorry for your loss.
I am now trying to find a nurse home for my sister.
I understand deeply what kind of suffer you left behind.
Now after grieving, lest time go to heal your pain.
Take care of yourself and smile again thinking on your future.
With Love
Elena
Thankyou x
So sorry to hear your sad news. I know what it is like to lose a special man. But you are right, John is at peace. Celebrate the fact that you were with such a brave man. You will grieve, but it is a natural process, a healing process. Remember the good times. Cry when you feel like it. We carers have suffered too. Be kind to yourself. Love and prayers. Rx
Thankyou. I know it is going to be a hard road but I have some really supportive friends including Yvonne who lost George to the same disease sixteen years ago and understands howI am feeling xx
Sorry meant 16 months x
Dear Pauline. I am so sorry. Although we expect it it does not help how it feels when it happens. A great big hug. Take care of yourself. He is at peace at last. Love AliBee
So sorry for your loss, it's a horrible illness and I watch my husband deteriorate slowly before my eyes every day. Take care Phil x
Thankyou. Yes heartbreaking to watch them deteriorate x
Thankyou. I do keep thinking about the lovely things you said to meet when we met at the last get together xx
Sorry that was meant for AliBee1
So sorry Pauline . As you say at least he is free now. You were such a brilliant carer.
I wish you all the best in your new life and hope we meet again at the next London meet up xxxx
I am so pleased to hear from you and wonder how everything is with you. I look forward to seeing you soon. Just spent the day at Registrars ,Funeraldirectors and done some flowers shattered but got a lot sorted xx
Apologies Pauline, I am only seeing your post today. My sincere condolences to you and your family. It is truly horrible watching our once strong, fun loving loved ones slowly deteriorating, but with the ending coming faster than we anticipated. Like you I felt a slight sense of relief, W was now at peace and his passing was peaceful and pain free. I miss him so much, but life has to go on for us and so I pray you will find strength for the days ahead.
Sending lots of love, Nanny857xx
Thank you. We have the funeral a week on Monday which I am dreading but then I know I must move on. Yes I will miss going to see John every day but he was in a home for two and a quarter years. I am going to do a bit of volunteering at the nursing home as everyone becomes a close knit family and it is nice to be able to help xx
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