Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2019

Bedding

Anyone used a weighted blanket ? My husband gets night terrors and gets tangled up with his goose down duvet , often falling out of bed .

Anyone used a weighted blanket ? My husband gets night terrors and gets tangled ...

Sunsetboulevard

•5 years ago

Frustration brings on shaking??

Okay. Here's another one for you guys: A lot of times when Sandy gets frustrated and angry with his body, the TV remote, etc., he starts shaking. It almost...

Okay. Here's another one for you guys: A lot of times when Sandy gets frustrated...

•5 years ago

Perfect and relaxation ...

So this evening was a real treat! I hired a massage therapist to come in, and treat Mom to a relaxing massage. She looks at me, and whispers, “I like it!” She...

So this evening was a real treat! I hired a massage therapist to come in, and tr...

•5 years ago

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Is It Time for a Nursing Home?

Hi all Its been a long time since I have been here, I am sorry about that. I have just been in headless chicken mode. My most lovely Mother is in the advanced...

Hi all Its been a long time since I have been here, I am sorry about that. I ha...

•5 years ago

Sleepy sleepy💤💤

Momma is so tired these days. She looks tired in her eyes, and is now taking afternoon naps pretty regularly. Up until now, she never took many naps during...

Momma is so tired these days. She looks tired in her eyes, and is now taking af...

•5 years ago

The Hummingbirds are back

Just to let you know, the PSPA have more hummingbird hanging decorations. I bought some last year but this year they are even better so have bought more. Log...

Just to let you know, the PSPA have more hummingbird hanging decorations. I bou...

•5 years ago

Keith has passed

The reason for my checking out this very helpful forum has, sadly, recently left us. Keith went through the latter stages where his sister (my partner) and his...

The reason for my checking out this very helpful forum has, sadly, recently left...

•5 years ago

Swallow test - passed with colors, just not flying colors

The speech therapist came last week and gave Sandy a swallow test. I kind of wanted it just to see where he's at. I suspected that he was having minor...

The speech therapist came last week and gave Sandy a swallow test. I kind of wan...

•5 years ago

Anticipating next piece of equipment for the adventure!

In my attempt to stay one step ahead of the wild tiger aka PSP / CBS (although I'm usually at least two steps behind), I am anticipating the next piece of...

In my attempt to stay one step ahead of the wild tiger aka PSP / CBS (although I...

•5 years ago

My Dinner Date

Tonight is our night out for dinner ... have I mentioned how much I love her?? I have been so blessed in this life to call her Momma ... she has taught me well...

Tonight is our night out for dinner ... have I mentioned how much I love her?? I...

•5 years ago

Thank you all

Thank you all for your thoughtful responses. I live in San Jose,ca

Thank you all for your thoughtful responses. I live in San Jose,ca

•5 years ago

Peace

My wonderful Mum......slept peacefully on Saturday. I am certain she is with my Nan creating uproar. Wicked she was until the end xx

My wonderful Mum......slept peacefully on Saturday. I am certain she is with my ...

•5 years ago

Hunter Moon

This is from a few nights ago. Night pictures aren't the best with the camera on a phone but it does have some nice contrast features. Ron

This is from a few nights ago. Night pictures aren't the best with the camera o...

•5 years ago

Caramel Apple Delivery!

My brother came by today with a wonderful delivery of Rocky Mountain Chocolate Factory Caramel Apples!!! Momma is a happy girl today!

My brother came by today with a wonderful delivery of Rocky Mountain Chocolate F...

•5 years ago

Trying to live with psp

I have psp.I sit about all day I can't live with this disease.I have double vision writing this and eating. I'm slow as hel!,my balance is gone and I'm in...

I have psp.I sit about all day I can't live with this disease.I have double vis...

•5 years ago

A Cold, Constipation, Mice and an OS Upgrade.

I have a cold making caregiver especially trying. No rest for the weary. Larry is now constipated after having had diarrhea. I am experienced a mouse...

I have a cold making caregiver especially trying. No rest for the weary. Larry ...

•5 years ago

PSP Patient | Sleepless Nights

Hello- My father was diagnosed with Progressive Supranuclear Palsy (PSP) and unfortunately doctors, nurses and even most specialist don’t really know much...

Hello- My father was diagnosed with Progressive Supranuclear Palsy (PSP) and un...

•5 years ago

Palliative care

First I want to thank Robin Riddle for the link to the post that indicates the stages of PSP. After discussing with my husband, we figured that he was between...

First I want to thank Robin Riddle for the link to the post that indicates the s...

•5 years ago

Give as much support as you can. More rare diseases that have no cure.

Since my sister was diagnosed with P.S.P. I have been reading as much as I can about it. They first diagnosed her with Parkinson's disease but a specialist...

Since my sister was diagnosed with P.S.P. I have been reading as much as I can a...

•5 years ago

Sub -types of PSP

I was at a support group last night for Frontal Temporal Dementia. Although my husband has been diagnosed with PSP, this group was the most appropriate I could...

I was at a support group last night for Frontal Temporal Dementia. Although my h...

•5 years ago

Medication

Hi all Just wondering what others do when your LO sleeps much longer than usual. Do you wake up to give meds or let sleep & give whenever they wake. Also if...

Hi all Just wondering what others do when your LO sleeps much longer than usual....

•5 years ago

on grief and loss

I was reading this book (finished it yesterday) about a mother's journey to Machu Picchu in Peru where she travels on her own, all the way from the UK, to...

I was reading this book (finished it yesterday) about a mother's journey to Mach...

•5 years ago

CHC review

Can anyone tell me what score is needed to get through an annual CHC review. Eg. Priority A. B. Etc.

Can anyone tell me what score is needed to get through an annual CHC review. Eg...

•5 years ago

Touchdown!

Momma enjoyed watching one of her grandsons play some football today! She’s 95% wheelchair now, and I am trying my best to not let that get in our way....

Momma enjoyed watching one of her grandsons play some football today! She’s 95%...

•5 years ago

Rest in peace Dad

My dear daddy passed away today. Am overcome with grief, and writing on this forum helps me in a way- therapeutic. Daddy was misdiagnosed about 5 years ago...

My dear daddy passed away today. Am overcome with grief, and writing on this for...

Emilysmarties34

•5 years ago

Drooling problem

My wife's drooling is becoming a major problem,is there any way of reducing the saliva?

My wife's drooling is becoming a major problem,is there any way of reducing the ...

•5 years ago

Dizzy?

Is dizziness a symptom you have experienced?

Is dizziness a symptom you have experienced?

•5 years ago

Computer/tablet help

Hi everyone, I’m very new to this group and it looks really helpful already. I’m hoping for a bit of advice/guidance on a replacement for my Dad’s fairly old...

Hi everyone, I’m very new to this group and it looks really helpful already. I’m...

•5 years ago

Humingbird

Just to say that the PSPA online shop is selling lovely acrylic hummingbirds for £5.Really nice

Just to say that the PSPA online shop is selling lovely acrylic hummingbirds for...

•5 years ago

Further down the PSP road

Following a bad fall down the stairs my wife has recently returned home after two months in hospital.The dining room has gone and is now her bedroom.We have...

Following a bad fall down the stairs my wife has recently returned home after tw...

•5 years ago

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