My dear daddy passed away today. Am overcome with grief, and writing on this forum helps me in a way- therapeutic. Daddy was misdiagnosed about 5 years ago with Parkinson’s, and it was only this year around Feb/March he met a neurologist who said he had PSP. He was at home until he had a fall and was taken to hospital in March. After that he ended up in a nursing home near my mum luckily, who was able to visit him every day. The past nine months have been such a whirlwind of emotions, seeing my daddy detoriate so quickly. I was able to visit dad a lot with my three month old baby girl, and I was so pleased he got to see her in his final days. He was trapped in his body, could not move at all. His mind was mentally sharp though right up to his last days. His eyes were open and looking straight at us. We talked to him, played music, showed our babies (my sisters children as well) to him, read poetry to him. Today his sister, his wife and eldest daughter was at his vigil, and my sister read a Yeats poem to him just before he took his last breath. He was listening. He’s in pain no more, and I have such treasured memories of him before the cruel PSP took him bit by bit. He had so much more to live for, he was fit and healthy until the PSP took over. He had a wonderful send off. Now to get through the next few weeks of funeral planning and memorial. I worry for my mum, who was dads carer all these years. I bet she’s wondering what now? All we can do is be there for her.
Thanks for reading and thoughts go out to those going through the same thing.
Emily x
Written by
Emilysmarties34
To view profiles and participate in discussions please or .
My deepest sympathy to you in the loss of your father, Emily. Thank heavens he is released from his prison. We all, here, understand the bittersweet/sorrow of the final peace for our beloveds.
I’m so sorry for your loss. It sounds like a peaceful send off in spite of how difficult and sad it is/was to say goodbye. I am thinking of you during this difficult time.
RIP, as you say , he is out of pain now and at peace from this cruel illness. Though are with you all at this sad time. I lost my husband age 65 on Easter Sunday from PSP. X
So sorry for your loss. My dad too so fit. Still mentally sharp but cannot move bedbound. We celebrate his 71st birthday sunday....i fear it will be his last x
Sorry for the sad loss of your father. Take comfort that he is finally rid of this horrid disease. It seem he could not have been more comfortable and was surrounded by his loved ones. Hang on to the good memories you have all made. Sending you hugs.
Thank you for sharing your story. It sounds like your family was loving and supportive. I’m sure your Dad was comforted by the sweet relationship you all shared with him.
Heartfelt condolences, Emily. There’s no one like Dad. We are in your exact same situation with my Mum too being my Dad’s main carer. Thoughts and prayers with all of you at this difficult time x
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
and thoughts go out to those going through the same thing. 
Dad
Frank now at peace & free
Praying for peace without understanding.
Dads finally at rest after 8 and half years suffering from CBD.
