Dizzy?

[Bellaismydog]

Is dizziness a symptom you have experienced?

[doglington]

Yes. It was the first symptom for my husband.

I've read your earlier posts and I'm not sure how far on you are.

My husband had difficulties swallowing as time went on and problems with phlegm and coughing. Finally he couldn't eat But he never had a major choking incident.

So, whilst you need to know what may happen, please remember you won't get them all ! The problem is that you don't know which ones you will. Do try to make the most of where you are.

Love Jean xx

[Dadshelper]

Dad had dizzy spells off and on, even after he became bed ridden. He said it was like the room was spinning then.

Ron

PS: Bella is my dog too

[messier]

I'm interested to try and understand the differences in symptoms between PSP, CBD and MSA. Have those with PSP had dizziness? My mother had balance problems early on but was always adamant that she wasn't at all dizzy. And I think she has CBD.

[enjoysalud in reply to messier]

My son did. HE WAS DX BY UCLA WITH PSP OR MSA....TOO EARLY TO MAKE A DEFINITE DX. Kaiser Permanente gave him PSP diagnosis ttwo years later.

He died May 4th, 2017, without a brain autopsy. Only a brain autopsy can provide a definite diagnosis.

[Katiebow]

I think the in balance issues must be hard to describe for the sufferer, my husband complained of constantly feeling as if he were drunk way before diagnosis. Doctors arranged for consultations with ear,nose and throats specialists who gave him useless and dangerous exercises to do, brain scans looking for tumours, never mentioned a trip to the neurologist. A nurse friend suggest that we ask for a referral to neurologist who immediately suspected PSP.

It's a lot to digest but once accepted you learn to take one day at a time but also to try to tick off things on your bucket list.

Sending love

Kate xx

[YoungPSP in reply to Katiebow]

Katiebow,

How long before diagnosis did your husband complain about the dizziness/drunk feeling?

Thanks

[Bellaismydog in reply to YoungPSP]

The husband is caregiver. I have dizziness all the time. It was dizziness that took me to neurologist.

[YoungPSP in reply to Bellaismydog]

Bellaismydog,

Thanks for the reply, both my grandfather and father have been diagnosed with PSP, my dad is in the final stages. I have started to have symptoms, the first symptom has been the "lightheadedness"/balance issues along with blurry vision, which has been constant for approximately 10 months. I have been to Mayo multiple times and they do not suspect PSP but have diagnosed me with Fibromyalgia and PPPD, however after going through the process with my dad and having multiple family members with a PSP diagnosis I am concerned that I maybe in the beginning stages. I have not experienced falls thus far but I have had the "dizziness", swallowing problems, occasional tremors, blurry vision, fatigue, etc. The "dizziness' was my dad's first symptom as well and it has had a profound effect on my daily activities.

[Bellaismydog in reply to YoungPSP]

Read the brains way of healing by dr Doidge and the telomerase revolution. By dr fossel.

[Bellaismydog in reply to Bellaismydog]

Better if not psp as the researchers haven’t got around to it yet. Read as though you have Alzheimer’s disease

[Katiebow in reply to YoungPSP]

I would say approx 18months but the apathy was a while before that. Hope that helps xxx

[acorneater]

This was my wife's first recognisable symptom,we thought is was her ears,but the mri confirmed it was her brain.

[Railfan]

I started having the occasional fall in 2016. I started feeling dizzy in 2017 and like most, I thought inner ear infection like my GP did. After 2 drugs and no response, the GP began looking for other causes, including finally a mini-cognitive test. I was finally sent to a Neurologist in 2018 who began looking at Multiple Sclerosis and not the usual Parkinson's most with PSP get. He needed to see how it changed over time before a confirmation as I didn't have the obvious MS brain lesions on my MRI. My vertical gaze issues showed up this year with a trip to the eye specialist. That is when it and other symptoms began to be put together.

When I contemplate on my falls and constant dizziness since 2017, I can't say one is always related to the other. There are times that I bend down or rise quickly that I can say I stumble because of the dizziness but my falls backward don't normally occur like that. I do see that some falls are when my feet are slow to respond to my upper body movement but I've even fallen backwards a few times when seated and my back is not supported.

[ncgardener799]

My Husband has a diagnosis of PSP by 2 movement disorder neurologists. We are 4 years into symptoms. He frequently complains of what he refers to as lightheadedness . He also went through various tests for ear and vision problems, also tested for orthostatic hypotension. He got some relief with his distance vision with glasses that have a prism, it helped with the double vision when he was driving and now if he is riding in car. Occasionally he is blessed with a few days of no dizzy or light headed feelings. No explanation as to why, but grateful when it randomly occurs.

[Teddies]

Mums early symptoms were constant dizziness no meds helped unfortunately x mum diagnosed PSP xx

[Bellaismydog]

Is the dizziness related to falling?

[Bellaismydog in reply to Bellaismydog]

In the material that describes pppd dizziness yes but no falls. What is that about?

[racinlady]

Hi Bellaismydog, Have you been diagnosed with PSP? I read your earlier posts and you were looking for a Dr then. Did you find one? If not, and you give your location, someone on here can probably put you in touch with a Dr. Or, at least suggest one.

My husband recently passed away. He had PSP confirmed by brain autopsy. He never described his problem as dizziness. He always said he had a balance problem and his vision was blurry. When he fell, it was usually because he tried to take a step backwards or tried to open a door that he had to pull toward him. He also would sometimes fall by trying to push a button on the microwave. I wonder if this isn't what some on here refer to as dizziness.

Pat

[Bellaismydog]

I was diagnosed by a movement disorder specialist called Carmela Tartaglia md She is a neurologist. I have her and other neurologists working on me right now. Thanks for your offer though.

[Hiking13]

Yes it was one of the first things that made my husband realise there was something wrong, he also had double vision and used to describe that he felt as though he was really drunk and very light headed. Then that was followed by excessive sweating.

[Sarah1972]

Mum often complained that she had dizziness x