In my attempt to stay one step ahead of the wild tiger aka PSP / CBS (although I'm usually at least two steps behind), I am anticipating the next piece of equipment.
I've posted that things have been so smooth, no major declines with Sandy's health probably for about four months, just subtle minor things. Well, it just seems like things are on the move again.
I have bragged about the wonders of Sara Stedy and I still think she's the best invention known to man, but he's having more and more trouble getting in and out of the thing. It's hard to get his hips in so I can close the flaps because it's so difficult for him to stand up straight and to get centered, rather than leaning far to the right (or left sometimes). And recently he starts to sit when there's nothing but air for him to sit on, before I have him in place. His legs get so tired from standing and hanging on for just 20 seconds or so that he starts to go down. Our caregiver usually has him stand in the shower, hanging on to two grab bars for about 30 seconds just while he washes his back side. Last week, Sandy didn't last more than 10 seconds.
Sandy doesn't notice the decline. I've tried talking with him about what to do next and when to do it but he thinks he's capable of much more than he really is.
Two PT's were here last week and both suggested that we will need a Hoyer lift before too long. They have recommended the super duper Hoyer lift (an electronic one with four large posts in four corners of the room and a track running across the top). Hoyer is actually just a brand name - other makers have this sort of equipment. This will enable me to operate it by myself. The type that Medicare covers takes two to operate. I am determined not to hurt myself so I will go the extra mile or two and buy one that will keep me safe and keep Sandy at home.
These are very expensive. There must be an outlet for used durable medical equipment. I know there are a few businesses out there but it seems like their inventory is limited. People buy lots of this equipment and nobody wants to keep it around after their person is finished with it. Maybe those of us on this site should start a co-op of sorts where we can buy/sell used equipment. Even with shipping to another state (although too expensive to ship to another country), it would still save a lot of money to buy used if we knew what we were buying and especially if the person selling could offer advice on whether that's the item we really need.
And, if anyone out there can recommend a different piece of equipment than the one we're thinking of, please let me know.
Lots of gratitude and hugs to all you wonderful people out there.