Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2019

Drinking

Has anyone had experience of not been able to drink? Mum is end of life and I understand that she will need less and less fluid however the problem is now...

Has anyone had experience of not been able to drink? Mum is end of life and I un...

Sarah1972

•5 years ago

25 Replies

Duration of disease - 26 replies

A few days ago, I posed a question about duration of disease. Wondering if anyone had any idea of timeline. I received 26 replies..each one different. So, if...

A few days ago, I posed a question about duration of disease. Wondering if anyon...

journeyofjoy

•5 years ago

4 Replies

Another change

We are in Minnesota. My husband Kurt started with FTD and psp. And now CBD. He is in a memory care facility at great personal expense. We go to church each...

We are in Minnesota. My husband Kurt started with FTD and psp. And now CBD. He i...

susantigner

•5 years ago

8 Replies

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Cousins are friends that will love you forever!

While at the cabin this weekend, we surprised mom with a surprise visit from her cousins that were really close during her childhood. They drove three hours...

While at the cabin this weekend, we surprised mom with a surprise visit from her...

bazooka111

•5 years ago

4 Replies

The marathon

Further to my note on my lovely John's passing, and saying that Ricky my granddaughters partner was running the Bournemouth marathon for PSP, I did go to...

Further to my note on my lovely John's passing, and saying that Ricky my grandda...

Servena03

•5 years ago

9 Replies

Weekend with the girls!

We are ending a very special weekend at the cabin! I invited my mothers sisters, and a few nieces and grand daughters to spend the weekend in a luxury cabin in...

We are ending a very special weekend at the cabin! I invited my mothers sisters,...

bazooka111

•5 years ago

12 Replies

live in carer - where to look for one?

Would anyone have suggestions for where to start looking for a live in carer for my father who has possible PSP, definitely atypical Parkinson's? Gumtree?...

Would anyone have suggestions for where to start looking for a live in carer for...

Cat-Blue

•5 years ago

9 Replies

Staying busy

Party dress Since only one picture can be posted at a time I periodically edit the photo to a different outfit. LOL 😂

Party dress Since only one picture can be posted at a time I periodically edit t...

SewBears

•5 years ago

3 Replies

Prisim glasses

What rare prism glasses?

tamaradecarlo

•5 years ago

17 Replies

Wheelchair

Hi all,being new to this site and disease.Can one be put in a wheelchair?

tamaradecarlo

•5 years ago

5 Replies

Duration of disease

Most of us on this site refer to the length of time one has had the disease. Are most people measuring this from onset of symptoms? I would assume so. Sandy...

Most of us on this site refer to the length of time one has had the disease. Are...

journeyofjoy

•5 years ago

33 Replies

I'm New here. introducton

I have been recently diagnosed with PSP, having formerly been diagnosed with PD then MSA. I am a retired Engineer and live on a smallholding until we move...

I have been recently diagnosed with PSP, having formerly been diagnosed with PD ...

Peasantfarmer

•5 years ago

23 Replies

Staying busy

Party dress Since only one picture can be posted at a time I periodically edit the photo to a different outfit. LOL 😂

Party dress Since only one picture can be posted at a time I periodically edit t...

SewBears

•5 years ago

8 Replies

Leaning - to the left now.

Sandy periodically (not every day) leans very far to the right. Sometimes I wonder if he's going to lean right out of the wheelchair and fall over. Well, last...

Sandy periodically (not every day) leans very far to the right. Sometimes I wond...

journeyofjoy

•5 years ago

7 Replies

Mouth ulcer in psp

My mother is suffering from psp disease . Now we are using ng tube for feeding her. And we are planning for peg. She has severe mouth ulcer because of this...

My mother is suffering from psp disease . Now we are using ng tube for feeding h...

nahida2019

•5 years ago

3 Replies

Monday

Coming downstairs this morning Larry said he had to pee this first thing. He had been up since 3 when I took him down. Got him up from his chair pulled his...

Coming downstairs this morning Larry said he had to pee this first thing. He had...

Hidden

•5 years ago

23 Replies

Botox. Uk

Hi has anyone had botox for the arm stiffening, we have an appointment soon, but it's like pulling hens teeth. Does it have to be done by a consultant, here in...

Hi has anyone had botox for the arm stiffening, we have an appointment soon, but...

Signor

•5 years ago

13 Replies

Present Ideas please

Mum is rapidly approaching her 87th birthday and nephews & nieces are asking for present ideas and I am struggling a bit as so many things are now not...

Mum is rapidly approaching her 87th birthday and nephews & nieces are asking for...

AJK2001

•5 years ago

9 Replies

Help for Constipation

I hope your mom’s palliative nurse will refer her to the palliative doctor asap to help resolve your mom’s constipation. My mom used to take a daily...

I hope your mom’s palliative nurse will refer her to the palliative doctor asap ...

mb2roger

•5 years ago

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New stsge

Hi all, a new stage we are going into. Sam was fitted with a peg tube over a year ago. We have been giving him 5 containers of Jevity. One & half at 7:00 am &...

Hi all, a new stage we are going into. Sam was fitted with a peg tube over a yea...

Krmaier6896

•5 years ago

4 Replies

Advice please.

Mum has been constipated for a minimum 11 days now. She has had 4 enemas in total, today’s one Arachis oil was taken a few hours ago but still no movement....

Mum has been constipated for a minimum 11 days now. She has had 4 enemas in tota...

Sarah1972

•5 years ago

35 Replies

Swallowing Improvement with Therapy

My wife has had PSP for about 5 years now and is experiencing the classic indicators of the disease. She has a PEG tube, difficulty swallowing and is on a...

My wife has had PSP for about 5 years now and is experiencing the classic indica...

ForkLover

•5 years ago

22 Replies

Checking in with an update

I see it is 5 months since we last posted. We don't look back or forward with this awful, energy sapping, debilitating disease we just survive. Each day has it...

I see it is 5 months since we last posted. We don't look back or forward with th...

crab2093

•5 years ago

7 Replies

PSP takes another wonderful person

Yes my family, I haven't been on this blog for a couple weeks, found it too difficult, my wonderful John was E.O.life for two weeks,after a chest infection,but...

Yes my family, I haven't been on this blog for a couple weeks, found it too diff...

Servena03

•5 years ago

23 Replies

Finally we getting some where

I feel so relived today I got to my mum's and her Parkinson nurse was here and she was appluade by the way she being treated. She made a lot of phone calls and...

I feel so relived today I got to my mum's and her Parkinson nurse was here and s...

River89

•5 years ago

5 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for October 2019

Drinking

Duration of disease - 26 replies

Another change

Cousins are friends that will love you forever!

The marathon

Weekend with the girls!

live in carer - where to look for one?

Staying busy

Prisim glasses

Wheelchair

Duration of disease

I'm New here. introducton

Staying busy

Leaning - to the left now.

Mouth ulcer in psp

Monday

Botox. Uk

Present Ideas please

Help for Constipation

New stsge

Advice please.

Swallowing Improvement with Therapy

Checking in with an update

PSP takes another wonderful person

Finally we getting some where

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive