CHC review

[edgie]

Can anyone tell me what score is needed to get through an annual CHC review. Eg. Priority A. B. Etc.

[Sarah1972]

I’m not sure but put as many in the high category as possible. Answer everything as worse case scenario. If your used to report righting it’s very similar. Get as much evidence as possible, keep a diary, toilet runs, toilet accidents, constipation, incontinence both bowel and bladder. Doesn’t have to be all the time. List of falls and near misses. Any falls phone for help in lifting on 111 as it is then recorded. Good luck x

[Mcates]

Does your loved one have chc already. Sounds like you are referring to the checklist which is not the same as a review. At a review they will look at whether the current care is still appropriate. They will also look at whether your loved one is still eligible for chc. I’m a community matron and have never had chc removed at a review meeting. Hopefully all will be fine. X

[kenh1 in reply to Mcates]

Likewise we had CHC for six years and never had CHC removed at the meeting. Fortunately we had the same nurse carrying out the reviews year on year and built up a very good working relationship. I found it was best to be friendly and helpful rather than trying to fight the system.

[NanBabs in reply to Mcates]

I have had long experience with CHC over the past 4 years with my husband`s case. We were initially refused, we appealed, we were awarded CHC retrospectively. We were then funded for another 14 months, had a review, were told CHC would be withdrawn, which it was. I have appealed, had a local review, still refused so I applied for an Independent Review Panel, which we had 6 weeks ago and I am awaiting the outcome of that. My husband died May 2018 so the wheels of CHC run exceedingly slowly !

I fully endorse the advice already given - record the worst case scenarios and fight each domain (it really feels like a battle). Each CCG seem to have their own interpretation of the guidelines, so you will need to be prepared - read the national guidelines.

Good luck.

xx

[AnneandChris]

Hello there

We were awarded CHC funding, which was applied for by our District Nurses, at the end of January.

Last Monday we had a CHC review carried out by a nurse and social worker. Our senior DN was there to support me. It was a lot less daunting than I expected and the assessors are going to recommend that funding remains the same, but the final decision is down to the Managers. So, we will have to wait and see, fingers crossed, we should know in about a months time.

We stressed the unpredictability of this disease, that you can be fine one day, and not the next, or the next week or month.

Chris seems to go from one UTI to the next and we are now trying another antibiotic. His up and down like the proverbial yoyo!

Still we keep on keeping on.

Anne

[NanBabs]

Further to my reply yesterday, we have received a letter from IRP upholding withdrawal of CHC, basically because a Primary Health need was not proved by the `Evidence`. I still don`t understand why someone with a terminal progressive condition (my husband died 9 months after the review) does not have a primary health need !

If it helps you, P scored 1 severe, 4 high and 3 medium on the DST - still not enough but don`t be put off, keep fighting for what is right.

x

[messier]

I've only just started looking into this as mum is not at this stage yet. I'm impressed by the Care To Be Different website caretobedifferent.co.uk/ which others on this Forum have talked about. It strikes me that one of the fundamental problems we face is that there is no treatment, never mind a cure. It is difficult to argue for a primary health need when there is limited health treatment that can be given! I suspect the answer is to medicalise everything as much as possible. Although we still haven't even got to the neuro appointment for a diagnosis - more than 6 month waiting list - I've just made enquiries to a local private neurological physiotherapy service so that I am starting to build up a list of the health treatments needed as goodness knows how much she will have deteriorated in 6 months.