Drooling problem: My wife's drooling is... - PSP Association

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Drooling problem

acorneater profile image
28 Replies

My wife's drooling is becoming a major problem,is there any way of reducing the saliva?

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acorneater profile image
acorneater
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28 Replies

Botox. That could create its own problems. Talk to the doctor about it.

1% atropine eye drops (an anticholinergic): This treatment is given as 1-2 drops under the tongue per day to dry the mouth. ... Botulinum toxin A (Botox) is sometimes used to decrease saliva production for people who have issues with drooling; botulinum toxin B (Myobloc) is used to treat dystonia.

acorneater profile image
acorneater in reply to

Thanks a lot,I have just made an appointment to see the G.P.

Sarah1972 profile image
Sarah1972

You can also get patches that reduce saliva. Good luck.

acorneater profile image
acorneater in reply to Sarah1972

thanks,but I'm a bit concerned about side effects.

easterncedar profile image
easterncedar

Atropine eyedrops worked very very well for my guy. His GP was reluctant when I first asked about using them, but the palliative care specialist recommended we try it and it was like magic. No side effects. It really helped with the choking problem he was having with the excess saliva.

acorneater profile image
acorneater in reply to easterncedar

thanks,I'm speaking to the GP later on today

allotmentartist profile image
allotmentartist

I agree with the atropine drops ,my husband was on the patches at first but they irritated him so he pulled them off after half an hour no problems with the drops work brilliantly x

acorneater profile image
acorneater in reply to allotmentartist

thanks for the advice

NannaB profile image
NannaB

My husband was allergic to patches and Atropine stopped working after a while so I asked the GP for a DeVilbiss suction pump, recommended by someone on this site. I showed it to him on the web site. He agreed we could have one and it came via the district nurse. It worked really well.

XxxX

acorneater profile image
acorneater in reply to NannaB

Thanks a lot,something else to tell the GP.

easterncedar profile image
easterncedar in reply to acorneater

The suction device was a help for a while, too.

AnneandChris profile image
AnneandChris

Hello there

Chris has been using Atropine which work, but the drooling got worse so he had one Botox jab which worked immediately. These need to be repeated every three months but he missed the last one as it coincided with his last horrendous fall. We are now using sea sickness patches together with the Atropine which seems effective.

Good luck and keep on keeping on.

Anne

Nat08 profile image
Nat08

Yes hun GP can give meds for this xx

beau1988 profile image
beau1988

May I ask are atropine drop through prescription?

acorneater profile image
acorneater in reply to beau1988

don't know.I'm awaiting to see the GP.

beau1988 profile image
beau1988 in reply to acorneater

Ok thanks

Cello8274 profile image
Cello8274 in reply to beau1988

Yes, Atropine drops Are by prescription only.

beau1988 profile image
beau1988 in reply to Cello8274

Thanks

easterncedar profile image
easterncedar in reply to beau1988

Yes, here in the US.

beau1988 profile image
beau1988 in reply to easterncedar

We're in Australia but I imagine it would be the same

Tunupup profile image
Tunupup

Botox significantly improved my sister's drooling. Too many side effects with the patches xx

acorneater profile image
acorneater in reply to Tunupup

I decided in agreement with yourself not to try patches.I am meeting her GP on 6/11 to discuss other options suggested by this forum.

David750 profile image
David750

My wife has PSP (UK). Tried Hyocine Hydrobromide patches (sea sickness) but stopped due to skin reaction and went to tablets of same and stopped them due to confusion. Switched to Atropine now at a rate of 1 drop 3 times a day before meals with great success with no confusion so far, though can be a side effect. There can be some drooling at meal times due mainly to inability to retain with lips - lack of muscle control with PSP - but overall there is now much less coughing due to saliva. All treatments on prescription.

gill1958 profile image
gill1958

Hi my husband had this problem but now they inject BOTOX into his saliva glands and it has totally stopped it x

My husband takes glycopýrrolate 1.2 mils every 4 hours and it has worked well for many years.He did try the scopolamine patch and had really, really bad hallucinations.

Dee in BC

easterncedar profile image
easterncedar in reply to

Yes, the glycopyrrolate helped my sweetheart when the atropine began to be less effective. I was trying to remember the name!

easterncedar profile image
easterncedar

As Dee in BC noted, glycopyrrolate is a good drug for this, too. My guy had no side effects from that that I could tell.

ncgardener799 profile image
ncgardener799

Use Sea Sick Patches with caution, they can increase problems with constipation!!

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