Progressive Supranuclear Palsy or PSP

[slombardi]

I was diagnosed with Progressive Supranuclear Palsy in January of this year after a broken bone in my pelvis that lead to a hospitalization where they diagnosed me. I went to the Mayo Clinic where they confirmed the diagnosis. I am now in assisted living where I seem to have improved. My problem now is neuropathy in my toes. Anybody know if this is part of PSP or something else — I am not diabetic. Thank you

[Dadshelper]

Welcome to the site! You'll find lots of info here using the search feature of old posts or just ask a question and someone will reply. I have read of people having PSP and neuropathy but I've don't recall that being a symptom of PSP. I'd call your doctor at Mayo and ask them about it. It could be possible you have two different issues going on at the same time.

Ron

[slombardi in reply to Dadshelper]

Thank you 🙏 am not at Mayo anymore and my neurologist here knows nothing about PPP. I was hoping to educate him

[SewBears]

I’m sorry that you’ve had to join us but welcome aboard!

There was a post on here about someone’s toes going straight up in the air and it was treated with botox injections. It was a reply to a different post and I can’t seem to find it now. However, if I recall, it was related to PSP. I hope you find answers and help. Please keep in touch.

❤️from I SewBears

[slombardi in reply to SewBears]

Thank you very much. Maybe someone else will remember the post on toes!

[SewBears in reply to slombardi]

There is a search feature on the home page. It’s in the top right corner and it looks like a magnifying glass. Click on it and do a search on toes. I got a lot of hits regarding the topic. I hope this helps...

[raincitygirl]

...And if that doesn’t work, Kevin reminds us that we often get better results by going out to Google the topic, being sure to add Health Unlocked into the search query. It does a deeper search of this site.

Good luck (and welcome 😊)

Anne G.

[slombardi]

Thank you for the warm welcome

[HomeinOhio]

I have PSP too and I have developed neuropathy in my feet and toes - numbness, tingling, sharp shooting pain. Sometimes I have a hard time getting my feet warm.