Sweating/Clammy

[Mybeautifulfriend]

Is this common with PSP? Should we be concerned about infection or fever? It seems like my friend is often sweating and clammy. Also, does the fatigue just worsen or is there a reprieve?

[Kevin_1]

Hi

I'm sorry to say the fatigue does worsen as part of the progression.

I have not come across sweating as a symptom of PSP and CBD.

Have you taken their temperature?

If it continues I would recommend talking to the GP. It might well be an infection. Is the urine clear and without bad smells? Urinary infections can be quite common and they are serious and need to be treated early.

Best to you

Kevin

[pune_india]

Hi

Sweating can also happen if blood sugar levels drop. It kept happening with my father and the doctor was able to identify it and recommend corrective action.

Take care!

[Farooqji in reply to pune_india]

What was the corrective act8

[Railfan in reply to Farooqji]

I am a diabetic. When the blood sugar drops you just need to increase it. Normally some very sweet fruit juice or a candy bar work if you are able to swallow. For times I am not near either of those, I carry sugar tablets. Those are very hard to chew and extremely dry. I doubt I will be able to use them much longer. Swallowing would still be an issue.

Something else that can be used if you can no longer swallow or the patient is unconscious with a diabetic coma, is glucagon. It is an injectable pen that puts glucose directly in. It is easy to use on someone that can't move, are unconscious, or otherwise can't administer their own shot.

[NannaB]

My husband would often become very hot and clammy. His GP told me that the part of the brain that helps control temperature was damaged by the PSP, the part that doesn’t develop in babies until they are older. So like babies he had to be helped. I put a fan by his chair for when he was hot and clammy and had a fleece handy for when he felt cold. I took his temperature if I felt he was hot and used a cold compress on his forehead and the fan if necessary. Sometimes it was really high but as he was not able to take antibiotics I had to do what I could to get it down. Fortunately it never developed into anything more serious and within a few hours he was back to normal but it was scary at times. As the PSP progressed, he did appear to sleep more but often he just had his eyes closed as he couldn’t blink so found it more comfortable to close them. If I asked him if he was awake he invariably raised his thumb.

XxxX

[Dianajeanann in reply to NannaB]

Very helpful information!

[HilsandR]

If the sweating is a new symptom then as a first port of call I would suggest getting your friend checked out for infection by his GP. Lack of temperature control was one of my husband's earliest symptoms with PSP and it never relented - some days I would have to change his shirt and jumper a couple of times due to them becoming soaked. PSP is not a one size fits all and the symptoms can vary greatly from person to person - many will not encounter this symptom. As for the fatigue it did get much worse for my husband but again, this may not be the same for everyone. It's very much a case of wait and see. Best wishes, Hils.

[Dianajeanann in reply to HilsandR]

This was a question I was just going to post. Now I see it is not that uncommon. My husband had a few episodes where he woke up with a wet T-shirt. Everything checked out all right. No infections. This disease brings up new questions almost every day!

[HilsandR in reply to Dianajeanann]

Absolutely right re the disease bringing up new questions every day. Just when you think you are on top of things PSP thinks differently and throws something else into the mix. Try not to think too far ahead and concentrate on dealing with things in the moment. Best wishes, Hils. x

[Hiking13]

My lovely husband Steve suffered a lot with sweating throughout his illness and it was something that happened very early on before we had any clue that he was that poorly or had even heard of PSP. He could be out somewhere and suddenly he would be saturated, his shirt would look like it had been dipped in a bucket of water. The sweats were usually accompanied by light heaviness and dizziness. He was always getting clammy too right up to the day he passed away. He would also feel very cold especially his feet so I suppose it was a lack of temperature control. It just goes to show how amazing our brains are in that they get on with all of this without us thinking about it until the brain is affected by something hideous like PSP and that’s probably why there are just so many different symptoms and why everyone is affected in different ways. I will be thinking of you and your friend as you face this journey.

Love Sarahxx

[Dianajeanann in reply to Hiking13]

My husband is always dizzy. Some times worse than others. He’s had two strokes and has PSP. After reading your post I’m wondering if his occasional nighttime sweating occurred after a really bad day of being dizzy.

[HilsandR in reply to Hiking13]

Thinking back, Sarah, 4 years before Rod got the diagnosis, we used to joke about his sweating as being the 'male menopause'. Little did we know then, and just as well, the hand we were going to be dealt. I remember so well the first episode when he went to put the bins out on a freezing winters day and came in soaked in sweat - bizarre! Further episodes often kicked in when he was actually cold but as time went by the episodes were regular during summer and winter. It does make you sit up and take notice of how much a healthy brain actually takes care of. Hils. x

[Katiebow]

Both were common occurrences with Ben, like NannaB I had a 10speed fan by him to cool him down when he felt too hot. He never wanted pyjamas but just boxer shorts in bed. As the disease developed he became increasingly tired and slept a lot, a welcome relief for him I think.

Kate xx

[LuisRodicioRodicio]

Hi Mybeautifulfriend!

Our experience:

From the fourth year after the first symptom of PSP-RS we have observed that some mornings upon waking the patient is sweating and clammy despite not being with excessive blankets, which could be a symptom that she has not presented throughout her life and could be related to PSP-RS. She can wake up in the morning with pyjama wet. The rest of the day does not present the symptom but if it is frequent to complain of heat or cold. It seems as if her temperature regulator system was abnormally sensitive. Keep the patient hydrated.

If the sweating is a new symptom then as a first port of call I would suggest getting the patient checked out for fever. Putting the forehead on the patient's forehead usually gives a good first idea of whether the fever is present. If there is fever, consult the physician asap.

Hugs and luck.

Luis

[Farooqji]

A homeopathic drug "belladonna extract" is excellent for excessive sweating. I have tested it with very good results

[Farooqji]

Belladonna also reduces the secretions of many organs, thereby helping to control conditions such as excessive stomach acid production. Belladonna is used to treat the rigidity, tremor, excessive salivation, and sweating caused by Parkinson's disease. .

[Tippyleaf]

Poor temperature control was an issue for my husband a struggle to maintain a comfortable temperature in his last year. He would feel cold and insist on extra clothes and get carers to turn up heating ( until they were instructed not too) then he would massively overheat and sweat profusely. He never had a UTI, chest infection or anything other than mild viral infections but could sweat profusely ( with an occasional briefly raised temperature)

Fatigue increased over his journey .

Love Tippy